Valentina Prada-Moreno, Juan David Wilches-Gutiérrez, Diana Roció Arias-Osorio
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引用次数: 0
Abstract
Objective: Describe the design and implementation of a transdisciplinary care model for patients with hereditary angioedema in Colombia.
Methods: Descriptive longitudinal observational study. 140 patients with hereditary angioedema were included in a transdisciplinary care model for one year. Seizure rates, hospitalizations, emergency room visits, quality of life, and pharmacological adherence were measured.
Results: The model was associated with reductions of 76% in seizures, 66% in hospitalizations, and 87% in emergency room visits. Pharmacological adherence increased 19% and was complete after four months. The quality of life increased significantly.
Conclusions: Hereditary angioedema is an orphan disease that requires a comprehensive approach for effective care.
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