Marlena van Munster, Anna J Pedrosa, Carolin Künkler, David J Pedrosa
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引用次数: 0
Abstract
Background: Quality of life (QoL) is known to be impaired in people with Parkinson's disease (PwPD). Not surprisingly, a considerable effort of health interventions is aimed at maintaining or improving QoL. Yet, little is known about its determinants from a PwPD perspective to inform person-centered health care interventions.
Objectives: This systematic review aims to overcome this information gap by synthesizing existing evidence on factors associated with PwPD' self-perceived QoL.
Methods: We searched six electronic databases (MEDLINE, EMBASE, PsycINFO, CINAHL, Web of Science, Cochrane Library) from inception to January 2022 for eligible qualitative studies of QoL in PwPD, supplemented by citation tracking and hand searching. Study quality was assessed using the QualSyst tool. In order to characterize the determinants of QoL in PwPD, we conducted a qualitative meta-synthesis.
Results: Our analysis revealed a wide range of facilitators and barriers to QoL relating to seven overarching themes: Illness experience, health care, everyday life, social life, identity, spirituality/religion, and environment.
Conclusions: Our systematic review reinforces the impact of symptom experience on PwPD's QoL. However, it also highlights the need to consider the non-physical dimensions of PD when assessing patients' QoL. It is therefore essential that health care professionals acknowledge the psychological, social and spiritual repercussions of PD and endeavor to respond to these concerns through a comprehensive and patient-centered strategy. Further research is needed to gain a deeper understanding of these facets of PD and to formulate successful interventions aimed at improving the QoL of PwPD.
背景：众所周知，帕金森病患者的生活质量（QoL）会受到影响。因此，为保持或改善生活质量而采取大量健康干预措施也就不足为奇了。然而，从帕金森病患者的角度来看，人们对其决定因素知之甚少，因此无法为以人为本的医疗保健干预措施提供依据：本系统性综述旨在通过综合与残疾人自我感觉 QoL 相关因素的现有证据来填补这一信息空白：我们检索了六个电子数据库（MEDLINE、EMBASE、PsycINFO、CINAHL、Web of Science、Cochrane Library），从开始到 2022 年 1 月，寻找符合条件的关于残疾人 QoL 的定性研究，并辅以引文追踪和手工检索。研究质量采用 QualSyst 工具进行评估。为了确定残疾人 QoL 的决定因素，我们进行了定性元综合：结果：我们的分析揭示了影响 QoL 的各种因素和障碍，这些因素和障碍与七个重要主题有关：结果：我们的分析揭示了影响患者 QoL 的各种因素和障碍，这些因素和障碍涉及七个总体主题：疾病经历、医疗保健、日常生活、社交生活、身份认同、精神/宗教和环境：我们的系统综述加强了症状体验对残疾人 QoL 的影响。然而，它也强调了在评估病人的 QoL 时考虑帕金森病的非身体层面的必要性。因此，医护人员必须认识到帕金森病对心理、社会和精神的影响，并努力通过以患者为中心的综合策略来应对这些问题。我们需要开展进一步的研究，以便更深入地了解帕金森病的这些方面，并制定成功的干预措施，从而改善帕金森病患者的生活质量。
期刊介绍：
Movement Disorders Clinical Practice- is an online-only journal committed to publishing high quality peer reviewed articles related to clinical aspects of movement disorders which broadly include phenomenology (interesting case/case series/rarities), investigative (for e.g- genetics, imaging), translational (phenotype-genotype or other) and treatment aspects (clinical guidelines, diagnostic and treatment algorithms)
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