The PNS Nurse Program: A Health Care Support Concept for Patients With Immune-Mediated Peripheral Nervous System Diseases.

IF 2.3 Q3 CLINICAL NEUROLOGY Neurology. Clinical practice Pub Date : 2024-06-01 Epub Date: 2024-04-15 DOI:10.1212/CPJ.0000000000200295

Marc Pawlitzki, Marcia Gasis, Lars Masanneck, Sven G Meuth, Tobias Ruck

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Abstract

Background: Immune-mediated peripheral nervous system (PNS) disorders pose diagnostic and therapeutic challenges, necessitating collaborative, patient-centered care. Limited access to specialized centers leads to delayed diagnosis and care, as seen during the COVID-19 pandemic. To address these challenges, accessible specialized care is crucial. On-site support plays a vital role in advising and assisting patients and caregivers, enabling multidisciplinary care for PNS diseases.

Recent findings: The PNS Nurse Education Program tackles these complexities, using specialized nurses experienced in multiple sclerosis and Parkinson disease. Focusing on peripheral neuroimmunologic disorders, PNS nurses monitor disease severity, optimize communication, and provide therapeutic support in the recently started era of available immunotherapies. Collaboration with other healthcare sectors and support groups further enhances patient care.

Implications for practice: Ultimately, the PNS Nurse Education Program aims to bridge the gap between complex treatments and limited specialized care, improving patient outcomes and relieving burdens on patients, caregivers, and healthcare systems.

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PNS 护士计划：免疫性周围神经系统疾病患者的医疗保健支持理念。

背景：免疫介导的外周神经系统（PNS）疾病给诊断和治疗带来了挑战，需要以患者为中心的协作护理。由于前往专科中心就诊的机会有限，导致诊断和治疗延误，在 COVID-19 大流行期间就出现了这种情况。为了应对这些挑战，方便的专业护理至关重要。现场支持在为患者和护理人员提供建议和帮助方面发挥着至关重要的作用，从而实现对 PNS 疾病的多学科护理：PNS 护士教育计划利用在多发性硬化症和帕金森病方面经验丰富的专业护士来解决这些复杂问题。PNS 护士重点关注外周神经免疫疾病，在最近开始使用免疫疗法的时代，她们会监测疾病的严重程度、优化沟通并提供治疗支持。与其他医疗保健部门和支持团体的合作进一步加强了对患者的护理：最终，PNS 护士教育计划旨在弥补复杂的治疗和有限的专业护理之间的差距，改善患者的治疗效果，减轻患者、护理人员和医疗保健系统的负担。

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来源期刊

Neurology. Clinical practice CLINICAL NEUROLOGY-

CiteScore

4.00

自引率

0.00%

发文量

期刊介绍： Neurology® Genetics is an online open access journal publishing peer-reviewed reports in the field of neurogenetics. The journal publishes original articles in all areas of neurogenetics including rare and common genetic variations, genotype-phenotype correlations, outlier phenotypes as a result of mutations in known disease genes, and genetic variations with a putative link to diseases. Articles include studies reporting on genetic disease risk, pharmacogenomics, and results of gene-based clinical trials (viral, ASO, etc.). Genetically engineered model systems are not a primary focus of Neurology® Genetics, but studies using model systems for treatment trials, including well-powered studies reporting negative results, are welcome.