The processes and outcomes related to ‘family-centred care’ in neuromotor and functional rehabilitation contexts for children with cerebral palsy: A scoping review

IF 1.8 4区医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-05-13 DOI:10.1111/cch.13271

Larissa Audi Teixeira Mota, Michelle Zampar Silva, Márcia dos Santos, Luzia Iara Pfeifer

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Abstract

Objective

The aim of this study is to identify the main processes and outcomes related to family-centred care (FCC) in neuromotor and functional rehabilitation of preschool children with cerebral palsy (CP).

Background

FCC is considered a reference for best practices in child rehabilitation. CP is the most common cause of physical disability in childhood with repercussions on functionality. There is a gap in knowledge of the practical principles of FCC, and it is necessary to develop a reference model for the practice of child rehabilitation professionals.

Methods

In this scoping review, the main databases selected were as follows: LILACS; Pubmed; Embase; The Cochrane Library; CINAHL (EBSCO); Scopus; Web of Science; PEDro (Physiotherapy Evidence Database); Open Gray and other banks of thesis. The terms combined in the search strategy were as follows: ‘Family-centered’, ‘Family-centred’ and ‘CP’. Inclusion criteria are as follows: studies on preschool-aged children with CP, undergoing family-centred functional therapeutic interventions (FCFTI) with outcomes on bodily structures and functions and/or activities and/or participation.

Results

The main participatory care methods identified were home intervention, environmental enrichment, collaborative realistic goal setting, planning of home-based activities and routine, child assessment feedback, family education/training, family coaching, encouraging discussion, observation of therapist and supervised practice. The main relational care qualities identified were as follows: respect, active listening, treat parents as equals, clear language, respect parents' ability to collaborate, demonstrate genuine care for the family, appreciate parents' knowledge and skills, demonstrate competence, experience and commitment. The main outcomes identified in children were improvement in motor and cognitive function and the child's functional ability. The main parentaloutcomes identified were empowerment, feeling of competence, self-confidence, motivation and engagement.

Conclusion

The main differences in FCFTI programs refer to the parental education/guidance component and the amount of intervention carried out by parents. It is possible that the elements chosen by the therapist in a FCFTI depend on characteristics of the child and caregivers.

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脑瘫儿童神经运动和功能康复中 "以家庭为中心的护理 "的相关过程和结果：范围综述。

研究目的本研究旨在确定以家庭为中心的护理（FCC）在学龄前脑瘫（CP）儿童神经运动和功能康复中的主要过程和结果：背景："以家庭为中心的护理 "被认为是儿童康复的最佳实践参考。脑瘫是导致儿童肢体残疾的最常见原因，并对儿童的功能产生影响。对 FCC 实用原则的认识还存在差距，因此有必要为儿童康复专业人员的实践开发一个参考模型：在此次范围审查中，选定的主要数据库如下：LILACS; Pubmed; Embase; The Cochrane Library; CINAHL (EBSCO); Scopus; Web of Science; PEDro (Physiotherapy Evidence Database); Open Gray 和其他论文库。检索策略中的术语组合如下：以家庭为中心"、"以家庭为中心 "和 "CP"。纳入标准如下：以学龄前儿童为研究对象，对其进行以家庭为中心的功能性治疗干预（FCFTI），并在身体结构和功能和/或活动和/或参与方面取得成果：发现的主要参与式护理方法包括家庭干预、丰富环境、合作性现实目标设定、家庭活动和常规计划、儿童评估反馈、家庭教育/培训、家庭辅导、鼓励讨论、治疗师观察和监督实践。确定的主要关系护理素质如下：尊重、积极倾听、平等对待家长、语言清晰、尊重家长的合作能力、表现出对家庭的真诚关怀、欣赏家长的知识和技能、表现出能力、经验和承诺。儿童的主要成果是运动和认知功能以及儿童的功能能力得到改善。父母的主要成果是增强能力、胜任感、自信心、积极性和参与度：家庭、儿童和青少年融合项目的主要差异在于家长教育/指导的内容以及家长干预的程度。治疗师可能会根据儿童和照顾者的特点来选择儿童早期智力开发项目的内容。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.