The use of proxy measurement of internal states in people with intellectual disability: A scoping review

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-05-15 DOI:10.1111/jar.13241

Kristen Webb, Monica Cuskelly, Ceridwen Owen

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Abstract

Background

The measurement of internal states of people with an intellectual disability is challenging. Given these difficulties, proxy respondents are sometimes used. However, the literature provides some caution about the validity of the use of proxy respondents.

Aims

This review aims to identify the available evidence regarding the use of proxy respondents in the measurement of internal states of people with intellectual disabilities.

Method

The Arksey and O'Malley scoping review framework was used for this review, refined with the Joanna Briggs Institute Methodology.

Results

Results indicate there are some differences in the findings reported with respect to the efficacy of the use of proxy respondents. These may be due to a number of inconsistencies and weaknesses in examinations of their utility.

Conclusions

If proxy-reports are to be useful in understanding the internal states of people with intellectual disability, researchers need to address the shortcomings revealed by this review.

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智障人士内心状态替代测量法的使用：范围综述。

背景：测量智障人士的内心状态具有挑战性。鉴于这些困难，有时会使用代理受访者。目的：本综述旨在确定有关在测量智障人士内心状态时使用代理受访者的现有证据：本综述采用 Arksey 和 O'Malley 的范围综述框架，并根据 Joanna Briggs 研究所的方法进行了改进：结果表明，在使用代理受访者的有效性方面，报告的结果存在一些差异。这可能是由于对其效用的研究存在一些不一致和不足之处：如果要使代理报告有助于了解智障人士的内心状态，研究人员就需要解决本综述所揭示的不足之处。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.