Embedding patient and public involvement into a doctoral study: developing a point-of-care HIV testing intervention for dental settings

J. Doughty, J. Preston, M. Paisi, A. Hudson, F. Burns, S. R. Porter, R. G. Watt
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Abstract

Patient and Public Involvement (PPI) can have a positive impact on research. PPI can make research more meaningful and appropriate as well as preventing research waste. For decades, patient advocates with HIV have played a key part in public health and research. This article presents the PPI activity undertaken during a doctoral study. The aim of this article is to demonstrate how PPI was embedded into a doctoral study that explored the feasibility of HIV testing in dental settings.Patients and the public were invited to be involved with the feasibility study through various organisations and charities. A comprehensive PPI activity strategy was devised, and appropriate funding was obtained. Patients and the public were predominantly consulted or collaboratively involved with several aspects of the study.Patients and the public positively contributed to the intervention development and the resources supporting its implementation. As a result, the study resources (i.e., questionnaire and information leaflets) were easier to read, and the intervention was more appropriate to the needs of patients. Furthermore, the training and focus groups conducted with dental patients and people with HIV benefitted from input of people with lived experience.PPI can be embedded within doctoral studies provided there is sufficient funding, flexibility, and supervisory support. However, PPI activity may be impacted by limited resource and a priori research protocol and funding agreements.
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将患者和公众参与纳入博士研究:为牙科机构制定护理点艾滋病毒检测干预措施
患者和公众参与 (PPI) 可以对研究产生积极影响。患者和公众参与可以使研究更有意义、更恰当,并防止研究浪费。几十年来,艾滋病患者倡导者在公共卫生和研究中发挥了重要作用。本文介绍了在一项博士研究中开展的公众宣传活动。本文旨在展示如何将公众宣传活动纳入一项博士研究,该研究探讨了在牙科环境中进行艾滋病检测的可行性。该研究通过各种组织和慈善机构邀请患者和公众参与可行性研究,制定了全面的公众参与活动战略,并获得了适当的资金。患者和公众对干预措施的制定以及支持其实施的资源做出了积极贡献。因此,研究资源(即调查问卷和信息传单)更易于阅读,干预措施也更符合患者的需求。此外,对牙科患者和艾滋病感染者进行的培训和焦点小组活动也得益于有生活经验者的参与。然而,PPI 活动可能会受到有限资源、先验研究协议和资助协议的影响。
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