Data Equity as a Building Block for Health Equity: Improving Surveillance Data for People With Disabilities, With Substance Use Disorder, or Experiencing Homelessness, United States.

IF 3 4区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Public Health Reports Pub Date : 2024-07-01 Epub Date: 2024-05-23 DOI:10.1177/00333549241245624
Ashley A Meehan, Shauna S Flemming, Shelley Lucas, Megan Schoonveld, Jennifer L Matjasko, Megan E Ward, Kristie E N Clarke
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引用次数: 0

Abstract

Objectives: People with disabilities, people experiencing homelessness, and people who have substance use disorders face unique health challenges. Gaps in public health surveillance data limit the identification of public health needs of these groups and data-driven action. This study aimed to identify current practices, challenges, and opportunities for collecting and reporting COVID-19 surveillance data for these populations.

Methods: We used a rapid qualitative assessment to explore COVID-19 surveillance capacities. From July through October 2021, we virtually interviewed key informants from the Centers for Disease Control and Prevention, state and local health departments, and health care providers across the United States. We thematically analyzed and contextualized interview notes, peer-reviewed articles, and participant documents using a literature review.

Results: We identified themes centered on foundational structural and systems issues that hinder actionable surveillance data for these and other populations that are disproportionately affected by multiple health conditions. Qualitative data analysis of 61 interviews elucidated 4 primary challenges: definitions and policies, resources, data systems, and articulation of the purpose of data collection to these groups. Participants noted the use of multisector partnerships, automated data collection and integration, and data scorecards to circumvent challenges.

Conclusions: This study highlights the need for multisector, systematic improvements in surveillance data collection and reporting to advance health equity. Improvements must be buttressed with adequate investment in data infrastructure and promoted through clear communication of how data are used to protect health.

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数据公平是实现健康公平的基石:改善美国残疾人、药物使用障碍者或无家可归者的监测数据》(Data Equity as a Building Block for Health Equity: Improving Surveillance Data for People With Disabilities, with Substance Use Disorder, or Experiencing Homelessness, United States.
目标:残疾人、无家可归者和药物滥用者面临着独特的健康挑战。公共卫生监测数据的缺口限制了对这些群体的公共卫生需求的识别和以数据为导向的行动。本研究旨在确定针对这些人群收集和报告 COVID-19 监测数据的当前做法、挑战和机遇:我们采用快速定性评估的方法来探索 COVID-19 的监测能力。从 2021 年 7 月到 10 月,我们对来自美国疾病控制和预防中心、州和地方卫生部门以及医疗保健提供者的关键信息提供者进行了虚拟访谈。我们通过文献综述对访谈记录、同行评议文章和参与者文件进行了主题分析和背景分析:结果:我们确定了一些主题,这些主题集中在基础性结构和系统问题上,这些问题阻碍了为这些人群和其他受到多种健康问题严重影响的人群提供可操作的监测数据。对 61 次访谈进行的定性数据分析阐明了 4 个主要挑战:定义和政策、资源、数据系统以及向这些群体阐明数据收集的目的。参与者指出,可以利用多部门合作、自动数据收集和整合以及数据记分卡来规避挑战:本研究强调了多部门、系统地改进监测数据收集和报告以促进健康公平的必要性。必须对数据基础设施进行充足的投资,并通过明确宣传如何利用数据保护健康来促进改善。
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来源期刊
Public Health Reports
Public Health Reports 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.00
自引率
6.10%
发文量
164
审稿时长
6-12 weeks
期刊介绍: Public Health Reports is the official journal of the Office of the U.S. Surgeon General and the U.S. Public Health Service and has been published since 1878. It is published bimonthly, plus supplement issues, through an official agreement with the Association of Schools and Programs of Public Health. The journal is peer-reviewed and publishes original research and commentaries in the areas of public health practice and methodology, original research, public health law, and public health schools and teaching. Issues contain regular commentaries by the U.S. Surgeon General and executives of the U.S. Department of Health and Human Services and the Office of the Assistant Secretary of Health. The journal focuses upon such topics as tobacco control, teenage violence, occupational disease and injury, immunization, drug policy, lead screening, health disparities, and many other key and emerging public health issues. In addition to the six regular issues, PHR produces supplemental issues approximately 2-5 times per year which focus on specific topics that are of particular interest to our readership. The journal''s contributors are on the front line of public health and they present their work in a readable and accessible format.
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