Functional assessment of children and adolescents with autism spectrum disorder in Argentina: ICF-ASD multicenter study.

IF 0.7 4区 医学 Q4 PEDIATRICS Archivos argentinos de pediatria Pub Date : 2024-10-01 Epub Date: 2024-05-30 DOI:10.5546/aap.2023-10171.eng
Silvana B Napoli, María P Vitale, María G Urinovsky, María P Fassero, Lucía Buján, Juan P Molina, Estela Rodríguez, Verónica Schiariti
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Abstract

Introduction. Autism spectrum disorder (ASD) is characterized by difficulties in social communication and repetitive and stereotyped behaviors. In addition to the diagnostic category, the activities performed by children and adolescents and their social involvement are the main aspects to be considered according to the International Classification of Functioning, Disability, and Health (ICF) proposed by the World Health Organization to describe health status. In a previous study, we developed the first version of a pediatric tool based on the ICF called ICF-ASD for the functional assessment of children and adolescents with ASD to capture functional characteristics adapted to our cultural setting. Our subsequent objective was to apply the ICF-ASD in a multicenter format to assess children and adolescents from different regions, review, and update it, and identify barriers and facilitators. Population and methods. The ICF-ASD version 1.0 was administered to children and adolescents younger than 16 years with a confirmed diagnosis of ASD (as per DSM-5 criteria), who were receiving follow-up at 5 children's health centers across Argentina. Results. Version 2.0 of the ICF-ASD was obtained, which included 34 categories (10 under body function, 15 under activities and participation, and 9 under environmental factors). A functional profile was developed for the whole sample (n = 308). Conclusions. The updated version of the ICF-ASD helps to standardize and systematize the collection of necessary data for an adequate follow-up of children and adolescents with ASD at a national level. It also allows to identify barriers to overcome and facilitators to be generalized.

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阿根廷自闭症谱系障碍儿童和青少年功能评估:ICF-ASD 多中心研究。
简介自闭症谱系障碍(ASD)的特点是社交沟通困难、行为重复和刻板。根据世界卫生组织为描述健康状况而提出的《国际功能、残疾和健康分类》(ICF),除了诊断类别外,儿童和青少年所从事的活动及其社会参与也是需要考虑的主要方面。在之前的一项研究中,我们开发了第一版基于 ICF 的儿科工具,名为 ICF-ASD,用于对患有 ASD 的儿童和青少年进行功能评估,以捕捉适合我们文化背景的功能特征。我们随后的目标是以多中心形式应用 ICF-ASD 评估来自不同地区的儿童和青少年,对其进行审查和更新,并找出障碍和促进因素。研究对象和方法。ICF-ASD 1.0 版的使用对象是阿根廷全国 5 家儿童健康中心接受随访的、确诊为 ASD 的 16 岁以下儿童和青少年(根据 DSM-5 标准)。结果我们获得了 2.0 版的 ICF-ASD,其中包括 34 个类别(10 个身体功能类别、15 个活动和参与类别以及 9 个环境因素类别)。为所有样本(n = 308)建立了功能档案。结论ICF-ASD 的更新版有助于将必要数据的收集标准化和系统化,以便在全国范围内对患有自闭症的儿童和青少年进行充分的随访。它还有助于确定需要克服的障碍和推广的促进因素。
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来源期刊
CiteScore
1.40
自引率
25.00%
发文量
286
审稿时长
6-12 weeks
期刊介绍: Archivos Argentinos de Pediatría is the official publication of the Sociedad Argentina de Pediatría (SAP) and has been published without interruption since 1930. Its publication is bimonthly. Archivos Argentinos de Pediatría publishes articles related to perinatal, child and adolescent health and other relevant disciplines for the medical profession.
期刊最新文献
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