With the best intentions: Implications on self-determination during Covid-19 restrictions

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-05-30 DOI:10.1111/jar.13257

Line Melbøe, Aina Aune Kane

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Abstract

Background

In times of crisis, the interests of the individual might be sacrificed for the health and safety of others. The aim of this study was to explore the situation under Covid-19 for persons with intellectual disabilities, focusing on implications on the right to self-determination within health protection.

Method

To understand how the relevant legal framework was governed by authorities and service providers during the Covid-19 pandemic, we have performed semi-structured interviews with 19 service providers in municipal home care services.

Results

Many residents were provided adequate and adapted information about Covid-19, but very few were involved in the introduction and implementation of infection control measures.

Conclusions

Our study has revealed how a crisis such as the pandemic not only puts the health of people with intellectual disabilities at risk, but also challenges their right to self-determination.

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用心良苦：Covid-19 限制期间对自我决定的影响。

背景：在危机时刻，个人利益可能会因为他人的健康和安全而被牺牲。本研究旨在探讨在 Covid-19 大流行期间智障人士的处境，重点是对健康保护中自决权的影响：为了了解当局和服务提供者在 Covid-19 大流行期间是如何管理相关法律框架的，我们对 19 名市政家庭护理服务提供者进行了半结构化访谈：结果：许多居民都获得了有关 Covid-19 的适当信息，但只有极少数人参与了感染控制措施的引入和实施：我们的研究揭示了像大流行病这样的危机不仅如何危及智障人士的健康，还如何挑战他们的自决权。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.