Pillar Mothers: Perspective on the Adaptation Process of Mothers of Autistic Children

IF 1.6 3区 心理学 Q2 FAMILY STUDIES Journal of Child and Family Studies Pub Date : 2024-06-01 DOI:10.1007/s10826-024-02863-6
Delphine Périard-Larivée, Élisabeth Godbout, Jean-Yves Bégin, Diane St-Laurent, Amélie de Serres-Lafontaine, Sarah De Pauw, Eve-Line Bussières
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Abstract

Mothers of autistic children encounter numerous daily challenges that can affect their adaptation. While many studies have documented the impact on mothers of having an autistic child and factors contributing to their adaptation and their experiences of motherhood, few have examined how mothers of autistic children perceive their overall adaptation. We investigated with a qualitative design how mothers of autistic children perceive stressors, facilitators (resources, coping strategies, and contexts), and outcomes of adaptation in various life domains. Participants included 17 mothers of autistic children ranging from 2 to 8 years old. Mothers participated in a phone interview about their perception of their successes, challenges, and adaptation as mothers of their children. A thematic analysis was conducted on interview transcripts using inductive and deductive coding. A cross-case analysis was subsequently used to identify themes and subthemes. Results highlight the complexity of the maternal adaptation process in the context of autism, which starts before the child’s diagnosis. Stressors, facilitators, and outcomes were described as overlapping in the psychological, social, professional, marital, and parental life domains. The accumulation of stressors was identified as mothers of autistic children’s main source of stress and almost impossible to reduce. Participants explained having difficulties accessing effective facilitators. While outcomes of adaptation vary across mothers and life domains, indicators of distress were identified for all participants. Implications are discussed regarding how service providers and society could better support mothers of autistic children by considering their complex reality and by providing more resources and information.

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支柱母亲:透视自闭症儿童母亲的适应过程
自闭症儿童的母亲每天都会遇到许多挑战,这些挑战可能会影响她们的适应。虽然许多研究都记录了自闭症儿童对母亲的影响,以及导致母亲适应和母亲体验的因素,但很少有研究探讨自闭症儿童的母亲如何看待她们的整体适应。我们采用定性设计调查了自闭症儿童的母亲如何看待压力因素、促进因素(资源、应对策略和环境)以及在不同生活领域的适应结果。参与者包括 17 位自闭症儿童(2 至 8 岁)的母亲。母亲们参加了一次电话访谈,了解她们作为孩子的母亲对成功、挑战和适应的看法。采用归纳和演绎编码对访谈记录进行了主题分析。随后进行了交叉分析,以确定主题和次主题。分析结果凸显了自闭症背景下母亲适应过程的复杂性,这一过程在孩子确诊之前就已开始。压力、促进因素和结果在心理、社会、职业、婚姻和父母生活等领域被描述为相互重叠的。压力的累积被认为是自闭症儿童母亲的主要压力来源,而且几乎不可能减轻。参与者解释说,她们很难获得有效的促进因素。虽然不同母亲和不同生活领域的适应结果各不相同,但所有参与者都发现了困扰指标。本文讨论了服务提供者和社会如何通过考虑自闭症儿童母亲的复杂现实以及提供更多资源和信息,更好地支持她们的意义。
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来源期刊
CiteScore
3.60
自引率
4.80%
发文量
300
期刊介绍: Journal of Child and Family Studies (JCFS) international, peer-reviewed forum for topical issues pertaining to the behavioral health and well-being of children, adolescents, and their families. Interdisciplinary and ecological in approach, the journal focuses on individual, family, and community contexts that influence child, youth, and family well-being and translates research results into practical applications for providers, program implementers, and policymakers. Original papers address applied and translational research, program evaluation, service delivery, and policy matters that affect child, youth, and family well-being. Topic areas include but are not limited to: enhancing child, youth/young adult, parent, caregiver, and/or family functioning; prevention and intervention related to social, emotional, or behavioral functioning in children, youth, and families; cumulative effects of risk and protective factors on behavioral health, development, and well-being; the effects both of exposure to adverse childhood events and assets/protective factors; child abuse and neglect, housing instability and homelessness, and related ecological factors influencing child and family outcomes.
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