Differences in caregiver and child factors within families of autistic youth across birth order groups

IF 2.2 4区 医学 Q1 EDUCATION, SPECIAL Research in Autism Spectrum Disorders Pub Date : 2024-06-04 DOI:10.1016/j.rasd.2024.102426
Sarah C. Boland, Tammy D. Barry, Rebecca A. Lindsey
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Abstract

Background

Research has highlighted the ways that birth order relates to autism spectrum disorder (ASD) prevalence rates. However, little research has focused on how birth order relates to the wellbeing of the family once a child is diagnosed with ASD. Additionally, many family factors (such as measures of parental wellbeing) and elements of child emotional/behavioral symptoms have not yet been investigated when evaluating the potential effects of birth order. The current study aimed to investigate how family birth order may impact caregiver reporting of parental wellbeing/competency and child symptoms.

Method

Three groups were created based on caregivers (N = 155) who have (1) a first-born child with ASD and then child(ren) without ASD, (2) child(ren) without ASD and then a child with ASD, and (3) an only child with ASD. Caregivers completed questionnaires measuring family resources, child symptoms, and parental factors.

Results

Despite comparable ratings on family resources and ASD severity, significant differences based on birth order emerged. Having one or multiple children without ASD before having a child with ASD may enhance feelings of satisfaction and competency as a parent. Parents with an only child with ASD also reported higher ratings of competency, had significantly less ASD knowledge, and demonstrated a significant negative correlation between efficacy and knowledge.

Conclusion

Families with an only child with ASD may require further support to augment their knowledge of ASD. Caregivers who have a first-born child with ASD may benefit from interventions focusing on their feelings of parental competency.

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不同出生顺序组别自闭症青少年家庭中照料者和儿童因素的差异
背景研究强调了出生顺序与自闭症谱系障碍(ASD)患病率的关系。然而,很少有研究关注一旦儿童被诊断为自闭症谱系障碍,出生顺序与家庭幸福的关系。此外,在评估出生顺序的潜在影响时,许多家庭因素(如衡量父母福祉的指标)和儿童情绪/行为症状要素尚未得到调查。本研究旨在调查家庭出生顺序如何影响照顾者对父母福祉/能力和儿童症状的报告。方法根据照顾者(N = 155)分为三组:(1)第一胎子女患有自闭症,随后子女未患有自闭症;(2)子女未患有自闭症,随后子女患有自闭症;(3)独生子女患有自闭症。照顾者填写了测量家庭资源、儿童症状和父母因素的调查问卷。结果尽管对家庭资源和自闭症严重程度的评分相当,但出生顺序却出现了显著差异。在生下患有自闭症的孩子之前,如果有一个或多个没有患有自闭症的孩子,可能会提高作为父母的满意度和能力。独生子女患有自闭症的父母对能力的评价也较高,但对自闭症的了解却明显较少,并且在效能和知识之间表现出明显的负相关。有一个患有 ASD 的头胎孩子的照顾者可能会受益于以父母能力感受为重点的干预措施。
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来源期刊
CiteScore
4.20
自引率
8.00%
发文量
108
期刊介绍: Research in Autism Spectrum Disorders (RASD) publishes high quality empirical articles and reviews that contribute to a better understanding of Autism Spectrum Disorders (ASD) at all levels of description; genetic, neurobiological, cognitive, and behavioral. The primary focus of the journal is to bridge the gap between basic research at these levels, and the practical questions and difficulties that are faced by individuals with ASD and their families, as well as carers, educators and clinicians. In addition, the journal encourages submissions on topics that remain under-researched in the field. We know shamefully little about the causes and consequences of the significant language and general intellectual impairments that characterize half of all individuals with ASD. We know even less about the challenges that women with ASD face and less still about the needs of individuals with ASD as they grow older. Medical and psychological co-morbidities and the complications they bring with them for the diagnosis and treatment of ASD represents another area of relatively little research. At RASD we are committed to promoting high-quality and rigorous research on all of these issues, and we look forward to receiving many excellent submissions.
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