Pain experiences during intrauterine device procedures: a thematic analysis of tweets.

IF 3.4 3区 医学 Q1 FAMILY STUDIES BMJ Sexual & Reproductive Health Pub Date : 2024-10-15 DOI:10.1136/bmjsrh-2023-202011
Neda Taghinejadi, Helene-Mari van der Westhuizen, Francis Ifeanyi Ayomoh, Wasim Ahmed, Trisha Greenhalgh, Anne-Marie Boylan
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Abstract

Introduction: In June 2021, high-profile testimonials in the media about pain during intrauterine device (IUD) procedures in the UK prompted significant discussion across platforms including Twitter (subsequently renamed X). We examined a sample of Twitter postings (tweets) to gain insight into public perspectives and experiences.

Methods: We harvested tweets posted or retweeted on 21-22 June 2021 which contained the search terms coil, intrauterine system, IUD or intrauterine. We analysed the dataset thematically and selected illustrative tweets with the authors' consent for publication.

Results: Following deduplication and screening, we included 1431 tweets in our analysis. We identified testimonials with descriptions of varied pain experiences. Twitter users reported that clinicians had not warned them that pain could be severe or explained the options for pain relief. Some raised concerns about pain being minimised or dismissed and linked this to the management of women's pain in medicine more broadly. Twitter users described connecting to an online community with shared experiences as validating and used this as a springboard for collective action.

Conclusions: While we acknowledge the limitations of our sample, this study highlights important perspectives and accounts relating to pain during IUD procedures. Our findings attest to the need for strategies to improve the patient experience for those opting for IUD as a clinical priority. Further research should explore IUD users' experiences, expectations and wishes around pain management.

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宫内节育器手术过程中的疼痛体验:推文主题分析。
导言:2021 年 6 月,英国媒体高调报道了宫内节育器(IUD)手术过程中的疼痛,引发了包括 Twitter(后更名为 X)在内的各种平台的广泛讨论。我们对 Twitter 上的发帖(推文)进行了抽样检查,以深入了解公众的观点和经历:我们收集了 2021 年 6 月 21-22 日发布或转发的推文,这些推文包含了线圈、宫内避孕系统、宫内节育器或宫内避孕等搜索词。我们对数据集进行了专题分析,并在征得作者同意后选取了具有说明性的推文进行发表:经过重复删除和筛选,我们将 1431 条推文纳入了分析范围。我们找到了描述各种疼痛经历的证词。推特用户称,临床医生没有警告他们疼痛可能会很严重,也没有解释缓解疼痛的方法。一些人对疼痛被最小化或被忽视表示担忧,并将其与医学界对女性疼痛的管理联系起来。推特用户将与具有共同经历的在线社区的联系描述为验证,并将其作为集体行动的跳板:虽然我们承认样本的局限性,但本研究强调了与宫内节育器手术过程中的疼痛有关的重要观点和叙述。我们的研究结果证明,有必要制定相关策略,以改善选择宫内节育器作为临床优先事项的患者的体验。进一步的研究应探讨宫内节育器使用者在疼痛管理方面的经验、期望和愿望。
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来源期刊
BMJ Sexual & Reproductive Health
BMJ Sexual & Reproductive Health Medicine-Reproductive Medicine
CiteScore
5.10
自引率
6.10%
发文量
38
期刊介绍: BMJ Sexual & Reproductive Health is a multiprofessional journal that promotes sexual and reproductive health and wellbeing, and best contraceptive practice, worldwide. It publishes research, debate and comment to inform policy and practice, and recognises the importance of professional-patient partnership.
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