Redefining family

IF 1.6 4区 医学 Q2 PEDIATRICS Journal of paediatrics and child health Pub Date : 2024-06-19 DOI:10.1111/jpc.16599
Oscar Li, Ariel G Vilidnitsky
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引用次数: 0

Abstract

An attending on my paediatrics rotation once asked me and a group of my peers, ‘What is the single most important thing you should try to identify during every patient encounter?’

‘Is the child “sick or not sick”?’ a bunch of us responded, quoting the oft-cited paediatrics buzz phrase. ‘Are their ABCs intact?’ someone else chimed in.

‘Those are both crucial questions to be asking’, the attending concurred. ‘But the single biggest thing I care about is, does this child have someone in their corner fighting for them? Whether it's a parent or someone else, does this child have an adult in their life who cares deeply about their wellbeing?’

Having just finished my paediatrics rotation, I was struck by the variety of family structures that existed among the patients I had the privilege of treating and learning from. Media has historically portrayed the traditional family as a heterosexual couple with biological children, usually a boy and a girl. This was the first definition of family that I learned as a child. As I grew older and saw the world around me, the definition of family expanded to include more than just this initial version. And most recently, on this rotation, my understanding of family has continued to expand even further.

When I think about family, I think about the teenage boy I cared for who, prior to his hospital admission, was living with his older brother because his father had died years ago and his mother had moved out of the country. Only a few years older than the boy himself, the brother visited him in the hospital nearly every day to try to make those dreary days a bit cheerier, while Mom—who spoke limited English—did her best to try to understand her son's complex medical workup through a telephonic language interpreter.

I also recall the two moms I met in the NICU, who had overcome so many obstacles to achieve biological parenthood together, now facing yet another challenge: their newborn's hypoxic birth injury. They read the consent forms for each procedure with careful precision, determined to make the best, most-informed decisions possible for their family.

Lastly, I remember the divorced dad and his growing son. Dad worked three jobs to secure just enough money to support both his son and him with basic living necessities. Mom, who lived in a separate state, drove all the way down to join her son's annual well-child visit and check up on him. The parents argued in the examination room about how best to take care of their son as he awkwardly watched the interaction. As difficult as it was, I could tell the tension came from a place of love and wanting to do right by their son.

No single family fit the societally ingrained definition of a ‘perfect family’, yet all cared deeply for the children in their lives and overcame immense barriers to pursue the best possible care for them. What I observed only further proved that families come in all shapes, sizes, colours, and numbers. Some families include biological children. But others consist of a couple adopting children. A same sex couple can get help from surrogate mothers or sperm donors. Interracial marriages bloom. Marriages are torn apart by divorce or death. Love reignites and new marriages blossom. There are single mothers and single fathers. There are stepparents and half-siblings. And let's not forget about pets. Family consists of those who love one another and care for each other's health and wellbeing. These individuals, whomever they may be, are especially impactful for our paediatric patients.

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重新定义家庭
儿科轮转时,一位主治医师曾问我和一群同行:"在每次接诊病人时,你们应该努力确定的最重要的一件事是什么?""孩子'病了还是没病'?"我们一群人引用儿科常说的流行语回答道。'"这两个问题都很重要",主治医师表示赞同。但我最关心的一点是,这个孩子是否有人在为他们奋斗?无论是父母还是其他人,这个孩子的生活中是否有一个成年人非常关心他们的健康?"刚刚结束儿科轮转,我有幸治疗和学习的病人中存在着各种各样的家庭结构,这给我留下了深刻的印象。媒体历来将传统家庭描述为一对异性夫妇与亲生子女,通常是一男一女。这是我小时候对家庭的第一个定义。随着年龄的增长和对周围世界的了解,家庭的定义也在不断扩大,不仅仅是最初的那个版本。最近,在这次轮调中,我对家庭的理解又有了进一步的扩展。一提到家庭,我就会想起我照顾过的一个十几岁的男孩,在入院前,他和哥哥住在一起,因为他的父亲多年前就去世了,母亲也搬到了国外。他的哥哥只比他大几岁,几乎每天都会去医院探望他,试图让那些沉闷的日子变得开心一点,而妈妈--她的英语水平有限--则通过电话语言翻译尽力理解儿子复杂的医学检查。我还想起了我在新生儿重症监护室遇到的两位妈妈,她们克服了重重困难,一起实现了生儿育女的梦想,现在又面临着另一个挑战:新生儿缺氧性产伤。她们认真仔细地阅读每项手术的同意书,决心为自己的家庭做出最好、最明智的决定。最后,我还记得那位离异的父亲和他成长中的儿子。爸爸打了三份工,挣的钱只够养活他和儿子的基本生活。住在另一个州的妈妈专程驱车赶来参加儿子的年度健康检查。在检查室里,父母就如何更好地照顾儿子争论不休,儿子则尴尬地看着父母的互动。没有一个家庭符合社会上根深蒂固的 "完美家庭 "的定义,但所有家庭都非常关心他们生活中的孩子,并克服重重困难,尽可能为他们提供最好的照顾。我的观察进一步证明,家庭有各种形状、大小、颜色和数量。有些家庭包括亲生子女。但也有一些家庭由一对夫妇领养孩子组成。同性夫妇可以得到代孕母亲或精子捐赠者的帮助。异族通婚盛行。离婚或死亡让婚姻支离破碎。爱情重燃,新的婚姻绽放。有单身母亲和单身父亲。有继父继母,也有同父异母的兄弟姐妹。还有宠物。家庭由那些彼此相爱、关心彼此健康和幸福的人组成。这些人,无论他们是谁,对我们的儿科病人来说都具有特别重要的影响。
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来源期刊
CiteScore
2.90
自引率
5.90%
发文量
487
审稿时长
3-6 weeks
期刊介绍: The Journal of Paediatrics and Child Health publishes original research articles of scientific excellence in paediatrics and child health. Research Articles, Case Reports and Letters to the Editor are published, together with invited Reviews, Annotations, Editorial Comments and manuscripts of educational interest.
期刊最新文献
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