What Should Personalised Mental Health Support Involve? Views of Young People with Lived Experience and Professionals from Eight Countries

Ayesha Sheikh, Jenna Jacob, Panos Vostanis, Florence Ruby, Inga Spuerck, Milos Stankovic, Nicholas Morgan, Catarina Pinheiro Mota, Rúben Ferreira, Şeyda Eruyar, Elmas Aybike Yılmaz, Syeda Zeenat Fatima, Julian Edbrooke-Childs
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Abstract

Research demonstrates that young people value mental health support that is tailored to their needs and preferences, rather than a “one size fits all” offer, which is often not equitably accessible (National Children’s Bureau, 2021). Understanding young people’s lived experiences across different sociocultural contexts is important. The aim of this research was to conduct an international qualitative study on the views of young people with lived experience and professionals, on proposed aspects of personalised support for anxiety and/or depression. Participatory action focus groups were conducted with N = 120 young people with lived experience of anxiety and/or depression (14–24 years) and with N = 63 professionals in Brazil, India, Kenya, Pakistan, Portugal, South Africa, Turkey, and the United Kingdom. Data were analysed using the rigorous and accelerated data reduction (RADaR) technique. Overall, although some country-specific differences were found in terms of what aspects of support young people found to be most important, individual preferences were considered stronger, furthering the view that support should be personalised to the needs of the individual young person. Young people experiencing anxiety and/or depression should be able to choose for themselves which aspects of support they would prefer in their own care and support plans, with families and mental health professionals providing guidance where appropriate, rather than removing the young person from the decision-making process altogether. It should also be ensured that the aspects of personalised support can be understood by young people and professionals from different contexts, including marginalised and minoritised groups and communities.

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个性化心理健康支持应包括哪些内容?来自八个国家的有亲身经历的年轻人和专业人士的观点。
研究表明,年轻人看重的是根据他们的需求和偏好量身定制的心理健康支持,而不是 "一刀切 "的服务,因为后者往往无法公平地提供(国家儿童局,2021 年)。了解年轻人在不同社会文化背景下的生活经历非常重要。本研究的目的是就有生活经验的年轻人和专业人士对焦虑和/或抑郁个性化支持的建议方面的看法开展一项国际定性研究。在巴西、印度、肯尼亚、巴基斯坦、葡萄牙、南非、土耳其和英国,与 N = 120 名有焦虑和/或抑郁生活经历的年轻人(14-24 岁)和 N = 63 名专业人员开展了参与式行动焦点小组。数据分析采用了严格的加速数据还原(RADaR)技术。总体而言,尽管在年轻人认为哪些方面的支持最重要方面发现了一些国家间的差异,但个人偏好被认为是更重要的,这进一步证实了支持应根据年轻人的个人需求进行个性化定制的观点。焦虑和/或抑郁的年轻人应该能够自己选择他们在自己的护理和支持计划中更喜欢哪些方面的支持,并由家人和心理健康专业人员在适当的时候提供指导,而不是让年轻人完全脱离决策过程。还应确保来自不同背景的年轻人和专业人士,包括边缘化和少数群体和社区,都能理解个性化支持的各个方面。
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来源期刊
CiteScore
5.20
自引率
7.70%
发文量
50
期刊介绍: The aim of Administration and Policy in Mental Health and Mental Health Services is to improve mental health services through research. This journal primarily publishes peer-reviewed, original empirical research articles.  The journal also welcomes systematic reviews. Please contact the editor if you have suggestions for special issues or sections focusing on important contemporary issues.  The journal usually does not publish articles on drug or alcohol addiction unless it focuses on persons who are dually diagnosed. Manuscripts on children and adults are equally welcome. Topics for articles may include, but need not be limited to, effectiveness of services, measure development, economics of mental health services, managed mental health care, implementation of services, staffing, leadership, organizational relations and policy, and the like.  Please review previously published articles for fit with our journal before submitting your manuscript.
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