Affiliate Stigma, Resilience and Quality of Life among Parents of Children with Autism Spectrum Disorder in Two Public Hospitals in Kelantan, Malaysia.
Noor Shuhada Salleh, Li Yoong Tang, Maruzairi Husain, Khatijah Lim Abdullah, Yee Cheng Kueh
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引用次数: 0
Abstract
Background: Often, the indirect impact of autism spectrum disorder (ASD) presents the family with significant challenges. One of these challenges is affiliate stigma due to parental affiliation with their child. This study aimed to explore affiliate stigma, resilience and quality of life (QoL) among parents of children with ASD.
Methods: Cross-sectional study of 144 parents of children with ASD were recruited from two main tertiary hospitals in Kelantan, Malaysia, a developing country in Southeast Asia. Pearson correlation was used to examine the relationship between parental affiliate stigma, resilience and QoL. Simple and multiple linear regression analyses were used to identify the significant associated factors of affiliate stigma, resilience and QoL.
Results: Correlational analyses revealed that perceived affiliate stigma demonstrated an inverse relationship with resilience and QoL. Additionally, resilience had a positive relationship with QoL. Regression analyses revealed that the father's employment status, the mother's level of education, having a disability card, the child's age at ASD diagnosis, comorbidities of the child and ASD severity perceived by parents were associated with parental affiliate stigma, resilience and QoL.
Conclusion: Study findings highlight the contribution of socio-demographic characteristics of children with ASD and their families in the determination of affiliate stigma, resilience and QoL.
背景：自闭症谱系障碍（ASD）的间接影响往往给家庭带来重大挑战。其中一个挑战是由于父母与孩子的关系而产生的附属成见。本研究旨在探讨自闭症谱系障碍儿童家长的附属成见、复原力和生活质量（QoL）：这项横断面研究从东南亚发展中国家马来西亚吉兰丹州的两家主要三甲医院招募了 144 名 ASD 患儿的家长。研究使用了皮尔逊相关法来检验父母附属机构的成见、复原力和 QoL 之间的关系。简单和多元线性回归分析用于确定附属机构污名、复原力和 QoL 的重要相关因素：相关分析表明，感知到的附属成见与复原力和 QoL 呈反比关系。此外，复原力与 QoL 呈正相关。回归分析表明，父亲的就业状况、母亲的教育水平、是否持有残疾证、孩子被诊断为自闭症时的年龄、孩子的合并症以及父母认为的自闭症严重程度与父母的附属成见、复原力和 QoL 相关：研究结果凸显了 ASD 儿童及其家庭的社会人口特征在决定附属成见、复原力和 QoL 方面的作用。
期刊介绍：
The Malaysian Journal of Medical Sciences (MJMS) is a peer-reviewed, open-access, fully online journal that is published at least six times a year. The journal’s scope encompasses all aspects of medical sciences including biomedical, allied health, clinical and social sciences. We accept high quality papers from basic to translational research especially from low & middle income countries, as classified by the United Nations & World Bank (https://datahelpdesk.worldbank.org/knowledgebase/ articles/906519), with the aim that published research will benefit back the bottom billion population from these countries. Manuscripts submitted from developed or high income countries to MJMS must contain data and information that will benefit the socio-health and bio-medical sciences of these low and middle income countries. The MJMS editorial board consists of internationally regarded clinicians and scientists from low and middle income countries.
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