A scoping review of early childhood support for Aboriginal and Torres Strait Islander children living with a disability in regional, rural and remote settings

IF 1.9 4区 医学 Q2 NURSING Australian Journal of Rural Health Pub Date : 2024-07-11 DOI:10.1111/ajr.13164
Anita D’Aprano PhD, Kim McRae DipEd, Suzanne Dayton MSW, Catherine Lloyd-Johnsen MPH, John Gilroy PhD
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Abstract

Introduction

Many experts and communities have concerns about how National Disability Insurance Scheme services are provided to Aboriginal and Torres Strait children. This study was undertaken at the request of the NPY Women's Council in partnership with the researchers, to explore supports for Aboriginal and Torres Strait Islander children living with a disability in their remote areas.

Objective

This scoping review aims to (a) explore the barriers and enablers to accessing disability support services for families of young Aboriginal and Torres Strait Islander children (0–8 years) living in regional, rural and remote settings, and (b) summarise best practice approaches for accessing support for young children in these settings.

Design

The search was run in three electronic databases, as well as grey literature sources. We assessed the quality of included publications using the Centre of Research Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange tool. A narrative synthesis was supported by thematic analysis.

Findings

From an initial search (557 citations), we identified 13 eligible documents. Most documents were peer-reviewed articles of qualitative studies. Key themes identified included the following: (1) Holistic approach, (2) Understanding disability, (3) Consistent relationships, (4), Flexibility, (5) Simplify system and (6) Enhance communication.

Discussion/Conclusion

This scoping review has revealed gaps in the provision of quality, culturally responsive disability services for families of Aboriginal and Torres Strait Islander children living in regional, rural and remote areas of Australia. A family-centred, flexible approach will help address their needs. Future research is required to design and evaluate models of care for Aboriginal and Torres Strait Islander children.

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对地区、农村和偏远地区为土著居民和托雷斯海峡岛民残疾儿童提供的早期儿童支持进行范围界定审查。
导言:许多专家和社区对如何向土著儿童和托雷斯海峡儿童提供国家残疾保险计划服务表示担忧。这项研究是应 NPY 妇女理事会的要求,与研究人员合作开展的,目的是探讨如何为偏远地区的土著居民和托雷斯海峡岛民残疾儿童提供支持:本次范围界定审查旨在:(a) 探讨生活在地区、农村和偏远环境中的土著居民和托雷斯海峡岛民幼儿(0-8 岁)家庭在获得残疾支持服务方面遇到的障碍和有利因素;(b) 总结在这些环境中为幼儿提供支持的最佳实践方法:设计:我们在三个电子数据库以及灰色文献来源中进行了搜索。我们使用原住民慢性病知识转化与交流卓越研究中心的工具对收录出版物的质量进行了评估。通过主题分析进行了叙述性综合:通过初步检索(557 条引文),我们确定了 13 篇符合条件的文献。大多数文献都是经同行评审的定性研究文章。确定的关键主题包括以下内容:(1) 整体方法;(2) 理解残疾;(3) 一致的关系;(4) 灵活性;(5) 简化系统;(6) 加强沟通:本次范围界定审查揭示了在为居住在澳大利亚地区、农村和偏远地区的土著居民和托雷斯海峡岛民儿童家庭提供优质的、符合其文化背景的残疾服务方面存在的差距。以家庭为中心的灵活方法将有助于满足他们的需求。未来需要开展研究,以设计和评估针对土著和托雷斯海峡岛民儿童的护理模式。
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来源期刊
Australian Journal of Rural Health
Australian Journal of Rural Health 医学-公共卫生、环境卫生与职业卫生
CiteScore
2.30
自引率
16.70%
发文量
122
审稿时长
12 months
期刊介绍: The Australian Journal of Rural Health publishes articles in the field of rural health. It facilitates the formation of interdisciplinary networks, so that rural health professionals can form a cohesive group and work together for the advancement of rural practice, in all health disciplines. The Journal aims to establish a national and international reputation for the quality of its scholarly discourse and its value to rural health professionals. All articles, unless otherwise identified, are peer reviewed by at least two researchers expert in the field of the submitted paper.
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