Sexual support and education for adults with mild intellectual disabilities: a Delphi study on multiple perspectives

IF 2.1 2区医学 Q1 EDUCATION, SPECIAL Journal of Intellectual Disability Research Pub Date : 2024-07-18 DOI:10.1111/jir.13172

W. de Wit, N. Frielink, D. Roeg, P. J. C. M. Embregts

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Abstract

Background

Providing appropriate sexual support and education for adults with mild intellectual disabilities (IDs) is a source of considerable debate, resulting in diverse, non-funded and potentially adverse practices. This study aims to identify a consensus among experts regarding what conditions are conducive to successful sexual support and education for adults with mild IDs.

Methods

A Delphi study was conducted with 13 experts, including experts-by-experience, relatives, support staff, psychologists and sexologists. Qualitative data on the conditions for sexual support and education were gathered in the first round and thematically analysed. In the following three quantitative rounds, consensus was achieved using Likert-type response scales and participants' feedback.

Results

Round 1 resulted in 82 conditions on six themes: ‘the necessary attitude’, ‘requirements’, ‘approach to delivering sexual support and education’, ‘appropriate providers’, ‘settings and timing’ and ‘effective collaboration with the network’. In the following three quantitative rounds, the experts reached consensus on 68 conditions distributed across the six themes.

Conclusions

The six themes highlight conducive conditions for successful sexual support and education for adults with mild IDs, emphasising the significance of a safe and supportive environment, comprehensive educational programmes, and the promotion of autonomy and protection. The consensus-based findings have distinct implications for practice and future research.

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为轻度智障成人提供性支持和性教育：关于多种观点的德尔菲研究。

背景：为轻度智障（IDs）成人提供适当的性支持和性教育是一个引起大量争论的问题，导致了不同的、无资金支持的和潜在的不利做法。本研究旨在确定专家们的共识，即哪些条件有利于为轻度智障成人提供成功的性支持和教育：方法：与 13 位专家（包括经验专家、亲属、支持人员、心理学家和性学家）进行了德尔菲研究。第一轮研究收集了有关性支持和性教育条件的定性数据，并进行了专题分析。在随后的三轮定量分析中，使用李克特式反应量表和参与者的反馈意见达成了共识：第一轮共收集到 82 项条件，涉及六个主题："必要的态度"、"要求"、"提供性支持和教育的方法"、"适当的提供者"、"环境和时间 "以及 "与网络的有效合作"。在随后的三轮定量分析中，专家们就分布在六个主题中的 68 个条件达成了共识：这六个主题强调了为轻度智障成人提供成功的性支持和性教育的有利条件，强调了安全和支持性环境、全面的教育计划以及促进自主和保护的重要性。以共识为基础的研究结果对实践和未来研究具有独特的意义。

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来源期刊

Journal of Intellectual Disability Research Multiple-

CiteScore

5.60

自引率

5.60%

发文量

期刊介绍： The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability and publishes papers reporting original observations in this field. The subject matter is broad and includes, but is not restricted to, findings from biological, educational, genetic, medical, psychiatric, psychological and sociological studies, and ethical, philosophical, and legal contributions that increase knowledge on the treatment and prevention of intellectual disability and of associated impairments and disabilities, and/or inform public policy and practice. Expert reviews on themes in which recent research has produced notable advances will be included. Such reviews will normally be by invitation.