The measure of meaning: redefining success in patient-oriented research

Abstract

Purpose This manuscript aims to consider traditional success metrics in patient-oriented research (POR) using insights from the Helping Enable Access and Remove Barriers To Support for Young Adults with Mental Health-Related Disabilities (HEARTS) study. Design/methodology/approach Through collective reflexivity, this manuscript underscores the inadequacy of current evaluation standards that focus primarily on quantifiable outputs. Findings The findings suggest that significant systemic challenges persist, including ageism and discrimination, which undermine the efforts of POR. Practical implications This manuscript argues for an expanded evaluation encompassing traditional metrics and integrating emotional, experiential and community impact measures. Such an approach is crucial to capturing POR's comprehensive effects and fostering a research environment that values inclusivity, supports well-being and ensures responsive and equitable research practices. Thus, aligning with the transformative goals of POR, aiming to enhance the quality and impact of health research and reflect the profound personal and communal transformations that are as significant as the outcomes they facilitate. Originality/value This manuscript represents an emancipatory approach to POR, distinguished by its authentic co-authorship model. Uniquely, it is composed in collaboration with young adults who are experts in experience and coresearchers. These co-authors bring invaluable first-hand insights that both critique and enrich our understanding, enabling them to actively shape the discourse and direction of future POR research. This collaboration ensures the development of more relevant, grounded and transformative approaches in mental health research, thereby enhancing the pertinence and impact of these findings in real-world settings.