{"title":"Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus","authors":"Mary Hughes , Michelle Doyle , Dearbhla Moroney , Orna Fennelly","doi":"10.1016/j.ijnsa.2024.100223","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><p>Children's Health Ireland (CHI), who govern and operate acute paediatric services for the greater Dublin area, are also the client for the new children's hospital project which will be Ireland's first fully digital hospital. Design, development and implementation of digital solutions has been prioritised by the National Strategy for Children's Nursing to transform and accelerate nurse-led services.</p></div><div><h3>Aim</h3><p>The aim of this phase of a larger study was to explore the perspectives and opinions of key stakeholders on the requirements, benefits, and challenges for a bespoke patient portal, with a specific focus on the ANP-led Neurosurgical Service and children and young people with hydrocephalus.</p></div><div><h3>Methods</h3><p>Interviews and focus groups were held online, and data were recorded and transcribed verbatim. Twenty-three participants across eight sites were interviewed including parents, healthcare professionals, experts and management/administrators. Data were analysed using <span><span>Braun and Clarke's (2006)</span></span> framework.</p></div><div><h3>Results</h3><p>Four key findings and considerations were identified in relation to patient portals in general and their interoperability with Electronic Health Records, as well as a bespoke patient portal for children and young people with hydrocephalus</p></div><div><h3>Conclusions</h3><p>The availability of a patient portal for children and young people with hydrocephalus would be hugely advantageous to their parents, the ANP led nursing service, and healthcare professionals in both the neurosurgical service at CHI and at regional healthcare organisations as well as for administration, research, and reports. More timely access to health data as well as a consistent log of information and communications between patients and healthcare professionals, would be more efficient and effective than current practices.The augmented ANP-led Neurosurgical Nursing Service at CHI will act as a pilot project from which other nurse-led digital patient services can learn from.</p></div><div><h3>Study Registration</h3><p>This study was conducted between September 2022 and June 2023. It was registered in Trinity College Dublin, Ireland</p></div><div><h3>Twitter Abstract</h3><p>A study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100223"},"PeriodicalIF":3.1000,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X2400050X/pdfft?md5=a26ee14e9b9c66d2c0e8380ceb0de30f&pid=1-s2.0-S2666142X2400050X-main.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Nursing Studies Advances","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2666142X2400050X","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
Background
Children's Health Ireland (CHI), who govern and operate acute paediatric services for the greater Dublin area, are also the client for the new children's hospital project which will be Ireland's first fully digital hospital. Design, development and implementation of digital solutions has been prioritised by the National Strategy for Children's Nursing to transform and accelerate nurse-led services.
Aim
The aim of this phase of a larger study was to explore the perspectives and opinions of key stakeholders on the requirements, benefits, and challenges for a bespoke patient portal, with a specific focus on the ANP-led Neurosurgical Service and children and young people with hydrocephalus.
Methods
Interviews and focus groups were held online, and data were recorded and transcribed verbatim. Twenty-three participants across eight sites were interviewed including parents, healthcare professionals, experts and management/administrators. Data were analysed using Braun and Clarke's (2006) framework.
Results
Four key findings and considerations were identified in relation to patient portals in general and their interoperability with Electronic Health Records, as well as a bespoke patient portal for children and young people with hydrocephalus
Conclusions
The availability of a patient portal for children and young people with hydrocephalus would be hugely advantageous to their parents, the ANP led nursing service, and healthcare professionals in both the neurosurgical service at CHI and at regional healthcare organisations as well as for administration, research, and reports. More timely access to health data as well as a consistent log of information and communications between patients and healthcare professionals, would be more efficient and effective than current practices.The augmented ANP-led Neurosurgical Nursing Service at CHI will act as a pilot project from which other nurse-led digital patient services can learn from.
Study Registration
This study was conducted between September 2022 and June 2023. It was registered in Trinity College Dublin, Ireland
Twitter Abstract
A study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus
背景爱尔兰儿童健康组织（CHI）负责管理和运营大都柏林地区的儿科急诊服务，同时也是新儿童医院项目的客户，该医院将成为爱尔兰首家全数字化医院。数字解决方案的设计、开发和实施已被国家儿童护理战略（National Strategy for Children's Nursing）列为优先事项，以转变和加速由护士主导的服务。这项大型研究的这一阶段旨在探讨主要利益相关者对定制患者门户网站的要求、益处和挑战的观点和看法，重点关注由助理护士主导的神经外科服务以及患有脑积水的儿童和青少年。八个地点的 23 名参与者接受了访谈，其中包括家长、医护人员、专家和管理/行政人员。结论为患有脑积水的儿童和青少年提供患者门户网站对他们的父母、ANP 领导的护理服务、CHI 神经外科服务和地区医疗机构的医护人员以及管理、研究和报告都非常有利。与目前的做法相比，更及时地访问健康数据以及一致的信息记录和患者与医护人员之间的沟通将更加高效和有效。在 CHI，由 ANP 领导的增强型神经外科护理服务将作为一个试点项目，其他由护士领导的数字化患者服务可以从中学习。本研究于2022年9月至2023年6月期间进行，在爱尔兰都柏林圣三一学院注册Twitter AbstractA study exploring requirements, benefits, & challenges for an interoperable patient portal in an ANP led Service for children with hydrocephalus
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