Oncology nurses' lived experience of caring for patients with advanced cancer in healthcare systems without palliative care services.

Hammoda Abu-Odah, Doris Leung, Engle Angela Chan, Jonathan Bayuo, Jing Jing Su, Ka-Yan Ho, Katherine-Ka-Wai Lam, John Wai-Man Yuen, Ivy Yan Zhao, Matthew J Allsop, Fadi M Al Zoubi, Mohammed N Al Khaldi, Eric L Krakauer, Alex Molassiotis
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Abstract

Background: Caring for patients with advanced cancer is complex and challenging, requiring varied expertise, including symptom management, communication skills, care coordination and emotional resilience. Within existing literature, the lived experiences of oncology nurses are poorly articulated in countries with a lower income where formal palliative care (PC) is absent.

Aim: To explore the lived experiences of Gazan oncology nurses who provide care to patients with advanced cancer in healthcare systems, without formal palliative care infrastructure.

Methods: A phenomenological approach was adopted. Semi-structured interviews were conducted between January and April 2022, in the Turkish Palestinian Friendship Hospital. Thematic analysis used the themes (corporeality, relationality, spatiality and temporality) to facilitate reflection on the meaning of participants' lived experiences.

Results: Interviews were undertaken with 16 oncology nurses. The experience of the 'erosion of nurses' work when coping with anxious attachments to patients and families' was the overarching theme in nurses' views, characterised by five sub-themes: (1) inadequacy of PC training and resources, (2) serving humanity, (3) pride in their profession, (4) existential distress and the coping strategies used by nurses, and (5) reported stress and anxiety when caring for seriously ill patients and their families.

Conclusions: The study sheds light on the challenges and powerful emotions experienced by oncology nurses who care for patients with advanced cancer, yet lack the necessary PC training and institutional resources. The findings indicate an urgent need for PC training for nurses within the Gazan healthcare system and other lower-income settings. Assessing nurses' emotions and relationships with patients and family caregivers is imperative to enable optimum care for patients with cancer and to foster resilience among their nurses.

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在没有姑息关怀服务的医疗系统中,肿瘤科护士护理晚期癌症患者的生活体验。
背景:护理晚期癌症患者是一项复杂而具有挑战性的工作,需要各种专业知识,包括症状管理、沟通技巧、护理协调和情绪恢复能力。在现有文献中,对于收入较低且缺乏正规姑息关怀(PC)的国家,肿瘤科护士的生活经验阐述得很少:方法:采用现象学方法。2022 年 1 月至 4 月期间,在土耳其巴勒斯坦友谊医院进行了半结构化访谈。采用主题分析法(身体性、关系性、空间性和时间性)促进对参与者生活经历意义的反思:对 16 名肿瘤科护士进行了访谈。在护士看来,"在应对对病人和家属的焦虑依恋时,护士的工作受到侵蚀 "是一个总主题,下设五个分主题:(1) PC 培训和资源不足;(2) 为人类服务;(3) 对自己职业的自豪感;(4) 存在的痛苦和护士采用的应对策略;(5) 护理重症病人及其家属时的压力和焦虑:本研究揭示了肿瘤科护士在护理晚期癌症患者时所面临的挑战和所体验的强烈情感,但她们缺乏必要的 PC 培训和机构资源。研究结果表明,加沙医疗保健系统和其他低收入环境迫切需要对护士进行个人护理培训。评估护士的情绪以及与患者和家庭护理人员的关系,对于为癌症患者提供最佳护理和培养护士的适应能力至关重要。
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A state-of-the-art review of community-based palliative care services in rural areas of Southern Minnesota and the United States. Exploring the patients' and family members' perspectives on home-based palliative care. Hospice educators' perspectives on e-learning in palliative care education in Ireland. Paediatric palliative care in low- and middle-income countries. Research Roundup.
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