How best to support parents in the management of standing frame usage in home settings: A mixed methods study

IF 1.8 4区医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-07-26 DOI:10.1111/cch.13310

Laerke Hartvig Krarup, Anders Holsgaard-Larsen, Helle Mätzke Rasmussen, Stine Østergaard Kyed, Charlotte Skau Pawlowski

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Abstract

Background

An improved understanding of the current practice of standing frame use may have implications for supporting parents in managing standing frames. We aimed to investigate how parents of children with cerebral palsy perceive and manage standing frame use in home settings.

Methods

We conducted a mixed methods study with an explanatory sequential design, first collecting and analysing quantitative questionnaire data and then using these results to inform a qualitative follow-up phase to explain them. The questionnaire was answered by 103 parents of children with cerebral palsy across five countries, Denmark, Norway, Great Britain, Canada and the United States, and 12 Danish families participated in the subsequent interviews. A descriptive analysis was conducted using the questionnaire data. The qualitative data were analysed using a directed content analysis, enabling integration of the quantitative and qualitative data.

Results

The quantitative analysis showed that 89% of the parents felt confident with their child's standing frame, and 82% felt they had sufficient knowledge about how their child's standing frame could/should be used. However, the qualitative analysis showed that even when feeling confident, the parents experienced insecurity regarding whether their child was positioned correctly, and being responsible for positioning was challenging.

Conclusion

Our study implies a need for providing educational materials to assist the parents in ensuring optimal positioning of their child in the standing frame to decrease insecurity. Additionally, our study suggests a need to provide more thorough information about the benefits of using a standing frame and ensure alignment of expectations in relation to the child's prognosis of functional independence.

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在家庭环境中如何更好地支持家长管理站立架的使用：混合方法研究。

背景：更好地了解目前站立架的使用情况可能会对支持家长管理站立架产生影响。我们旨在调查脑瘫儿童的父母如何看待和管理家庭环境中站立架的使用：我们进行了一项混合方法研究，采用解释性顺序设计，首先收集和分析定量问卷数据，然后利用这些结果为定性后续阶段提供信息，以解释这些结果。丹麦、挪威、英国、加拿大和美国五个国家的 103 名脑瘫儿童家长回答了问卷，12 个丹麦家庭参加了随后的访谈。对问卷数据进行了描述性分析。定性数据采用定向内容分析法进行分析，从而将定量和定性数据结合起来：定量分析显示，89% 的家长对孩子的站立架有信心，82% 的家长认为他们对如何/应该使用孩子的站立架有足够的了解。然而，定性分析显示，即使家长感到有信心，他们也会对自己孩子的站立姿势是否正确感到不安全感，而且负责孩子的站立姿势也具有挑战性：我们的研究表明，有必要提供教育材料，帮助家长确保孩子在站立架上的最佳姿势，以减少不安全感。此外，我们的研究还表明，有必要就使用站立架的益处提供更全面的信息，并确保与儿童功能独立的预后相一致。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.