"I Don't Feel Judged, I Don't Feel Less of a Person" - Engaged and Supportive Providers in the HIV Care Experiences of Black Sexual Minority Men Living with HIV.

IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Patient preference and adherence Pub Date : 2024-08-05 eCollection Date: 2024-01-01 DOI:10.2147/PPA.S467587
Kirstin Kielhold, Erik D Storholm, Hannah E Reynolds, Wilson Vincent, Daniel E Siconolfi, Susan M Kegeles, Lance Pollack, Chadwick K Campbell
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Abstract

Background: Black sexual minority men (BSMM) in the Southern region of the United States experience a disproportionate burden of HIV. Research findings suggest that having supportive patient-provider relationships are critical for sustained HIV care engagement. The present study explores the role of supportive healthcare providers in the care engagement among BSMM living with HIV (BSMM+) in the US South.

Methods: Semi-structured qualitative interviews were conducted with BSMM+ in Texas (n=27) to explore perceived barriers and facilitators of sustained care engagement. Interviews lasted 60 minutes on average, were transcribed, coded, and analyzed using applied thematic analysis.

Findings: Participants described how important having relationships with engaged and supportive HIV care and service providers is to sustained engagement in care and positive HIV clinical outcomes. Supportive providers were characterized as non-judgmental, meeting patients' needs, and making patients feel "seen". Less supportive providers were described as making their patients "feel like a number" and having lack of follow through on proposed support and resources. Supportive providers were associated with increased care engagement of their patients while less supportive providers often led to patients switching providers, losing touch with services, and getting off track with their care.

Discussion: We found that among BSMM+ an important facilitator of sustained care engagement was having positive, affirming, and knowledgeable healthcare providers, while negative and dismissive experiences with providers was a notable barrier to care engagement. This work highlights the need for a scale up of comprehensive, ongoing trainings in patient-centered and person-first communication for providers. Further, manageable provider caseloads can facilitate more thorough patient interactions where tailored HIV care and education can be provided in a safe and non-judgmental environment.

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"我不觉得自己被评判,也不觉得自己不是一个人"--感染艾滋病毒的黑人性少数群体男性的艾滋病毒护理经历中,提供者的参与和支持。
背景:美国南部地区的黑人性少数群体男性(BSMM)承受着不成比例的艾滋病负担。研究结果表明,患者与医疗服务提供者之间的支持性关系对于持续参与 HIV 护理至关重要。本研究探讨了支持性医疗服务提供者在美国南部感染 HIV 的 BSMM+ 患者(BSMM+)参与护理过程中的作用:方法:对得克萨斯州的 BSMM+ 进行了半结构化定性访谈(n=27),以探讨持续参与护理过程中感知到的障碍和促进因素。访谈平均持续 60 分钟,采用应用主题分析法进行转录、编码和分析:参与者描述了与参与并提供支持的艾滋病护理和服务提供者建立关系对于持续参与护理和取得积极的艾滋病临床结果有多么重要。支持性服务提供者的特点是不做评判、满足患者需求并让患者感觉 "被看见"。而支持性较差的医疗服务提供者则会让病人 "感觉自己是个数字",并且对病人提出的支持和资源建议缺乏跟进。支持性较强的医疗服务提供者会提高患者的护理参与度,而支持性较弱的医疗服务提供者往往会导致患者更换医疗服务提供者、与服务机构失去联系以及偏离护理轨道:我们发现,在 BSMM+ 中,拥有积极、肯定且知识渊博的医疗服务提供者是持续参与护理的重要促进因素,而与医疗服务提供者之间的负面和轻蔑经历则是参与护理的显著障碍。这项工作突出表明,有必要扩大对医疗服务提供者进行以患者为中心和以人为本的沟通方面的全面、持续培训的规模。此外,可控的医疗服务提供者工作量可以促进更全面的患者互动,从而在安全、无偏见的环境中提供量身定制的艾滋病护理和教育。
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来源期刊
Patient preference and adherence
Patient preference and adherence MEDICINE, GENERAL & INTERNAL-
CiteScore
3.60
自引率
4.50%
发文量
354
审稿时长
6-12 weeks
期刊介绍: Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal. As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.
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