{"title":"Pattern of admissions and needs assessment for palliative care services among in-patients in a tertiary health facility in South-Western Nigeria.","authors":"Babatunde Akodu, Olufunmilayo Olokodana-Adesalu, Moninuola Ojikutu, Ann Ogbenna, Taiwo Agunbiade, Nwando Nwosa, Ashti-Doobay Persaud, Matthew Caputo, Denise Drane, Charlesnika Evans, Adeboye Ogunseitan, Joshua Hauser","doi":"10.1186/s12904-024-01537-w","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Palliative care evolution focuses on education and medication accessibility. As little as 12% of palliative care needs are met. Assessment of the domains of Palliative care and patients' and families' experience are essential in life-limiting conditions. The Lagos University Teaching Hospital (LUTH), have the National Cancer Centre without offering palliative care services.</p><p><strong>Aim: </strong>The aim was to examine pattern of admissions and needs assessment for palliative services among patients admitted into LUTH wards.</p><p><strong>Materials and method: </strong>Responses were entered into a data sheet inputted into Epi info version 7.2. Descriptive characteristics of the participants were presented as frequencies and percentages for age, sex, pattern of disease, domains of Palliative care, Advance care Plan, Preparation for home care, death and Education about the illness and category of medical conditions (palliative and non-palliative conditions). Together for Short Lives (TfSL) tool was used to categorize respondents' conditions into Palliative and Non-palliative conditions. Chi-square test was used to determine association between independent variables (pattern of diagnoses, stage of disease, advanced care plan, preparation for home care/ death and education on illness) and dependent variables (category of medical condition). Chi-square test was also used to explore the association between specialty of the managing doctor (independent variable) and Advance care plan (dependent variable). The level of statistical significance was P-value < 0.05.</p><p><strong>Results: </strong>80.6% of the respondents had palliative care conditions, 83.7% had family members as their caregiver while 13.2% of the participants had no caregiver and 65.9% had no advance care plan. There was no preparation for home care or death in 72.1%, 70.5% had education about their illness, and 68.2% were in the advanced stage of their disease. Participants attending the surgery non-trauma unit (51.6%) were more likely to have advance care plans. Adults were more likely to have palliative care conditions (79.8%) compared to children (20.2%), and was statistically significant.</p><p><strong>Conclusion: </strong>Majority of the participants need palliative care services but are unavailable and unmet and the most predominant condition was cancer. Majority had no advance care plan or preparation for home care or death despite having advanced stage of the disease. This survey emphasized the need for symptom management, communication and provision of support.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5000,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11331655/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"BMC Palliative Care","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s12904-024-01537-w","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
Abstract
Background: Palliative care evolution focuses on education and medication accessibility. As little as 12% of palliative care needs are met. Assessment of the domains of Palliative care and patients' and families' experience are essential in life-limiting conditions. The Lagos University Teaching Hospital (LUTH), have the National Cancer Centre without offering palliative care services.
Aim: The aim was to examine pattern of admissions and needs assessment for palliative services among patients admitted into LUTH wards.
Materials and method: Responses were entered into a data sheet inputted into Epi info version 7.2. Descriptive characteristics of the participants were presented as frequencies and percentages for age, sex, pattern of disease, domains of Palliative care, Advance care Plan, Preparation for home care, death and Education about the illness and category of medical conditions (palliative and non-palliative conditions). Together for Short Lives (TfSL) tool was used to categorize respondents' conditions into Palliative and Non-palliative conditions. Chi-square test was used to determine association between independent variables (pattern of diagnoses, stage of disease, advanced care plan, preparation for home care/ death and education on illness) and dependent variables (category of medical condition). Chi-square test was also used to explore the association between specialty of the managing doctor (independent variable) and Advance care plan (dependent variable). The level of statistical significance was P-value < 0.05.
Results: 80.6% of the respondents had palliative care conditions, 83.7% had family members as their caregiver while 13.2% of the participants had no caregiver and 65.9% had no advance care plan. There was no preparation for home care or death in 72.1%, 70.5% had education about their illness, and 68.2% were in the advanced stage of their disease. Participants attending the surgery non-trauma unit (51.6%) were more likely to have advance care plans. Adults were more likely to have palliative care conditions (79.8%) compared to children (20.2%), and was statistically significant.
Conclusion: Majority of the participants need palliative care services but are unavailable and unmet and the most predominant condition was cancer. Majority had no advance care plan or preparation for home care or death despite having advanced stage of the disease. This survey emphasized the need for symptom management, communication and provision of support.
背景:姑息关怀的发展侧重于教育和药物的可及性。只有 12% 的姑息关怀需求得到了满足。评估姑息关怀的各个领域以及病人和家属的体验对于生命垂危的情况至关重要。拉各斯大学教学医院(Lagos University Teaching Hospital,LUTH)拥有国家癌症中心,但不提供姑息关怀服务。目的:该研究旨在考察拉各斯大学教学医院病房收治病人的模式以及对姑息关怀服务的需求评估:将回答输入数据表,并输入 Epi info 7.2 版。参与者的描述性特征以频率和百分比的形式呈现,包括年龄、性别、疾病模式、姑息关怀领域、预先关怀计划、家庭护理准备、死亡和疾病教育以及医疗状况类别(姑息和非姑息状况)。使用 "短命在一起"(TfSL)工具将受访者的病情分为姑息性和非姑息性两种。利用卡方检验确定自变量(诊断模式、疾病阶段、晚期护理计划、家庭护理/死亡准备和疾病教育)与因变量(病情类别)之间的关联。此外,还使用了卡方检验来探讨主治医生的专业(自变量)与预先护理计划(因变量)之间的关联。统计显著性水平为 P 值:80.6%的受访者患有姑息治疗疾病,83.7%的受访者有家人作为其护理人员,13.2%的受访者没有护理人员,65.9%的受访者没有预先护理计划。72.1%的人没有为家庭护理或死亡做好准备,70.5%的人接受过疾病教育,68.2%的人处于疾病晚期。在外科非创伤科室就诊的参与者(51.6%)更有可能制定预先护理计划。与儿童(20.2%)相比,成年人(79.8%)更有可能拥有姑息治疗条件,这在统计学上具有显著意义:结论:大多数参与者需要姑息关怀服务,但却无法获得或得不到满足,最主要的病症是癌症。大多数人尽管处于疾病晚期,却没有预先护理计划,也没有为家庭护理或死亡做好准备。这项调查强调了症状管理、沟通和提供支持的必要性。
期刊介绍:
BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.