Disseminating the F-Words for Child Development to Parents of Children With Developmental Disabilities in Iran: A Qualitative Pilot Feasibility Study

IF 1.8 4区医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-08-21 DOI:10.1111/cch.13321

Zahra Maleki, Seifollah Heidarabadi, Ahmad Mohammadi, Saber Azami-Aghdash, Peter Rosenbaum, Andrea Cross, Alice Kelen Soper

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Abstract

Background

Attitudes toward childhood disability have historically focused on biomedical efforts on ‘fixing’. The introduction of WHO's ICF framework for health and Canadian researchers' ‘F-words’ (functioning, fitness, fun, friends, family and future) have significantly changed the field. To explore whether the F-words ideas influenced parents' perspectives on their child's abilities and rehabilitation goals, this qualitative pilot study introduced the F-words to Iranian parents with a child with a developmental disability.

Methods

This study was conducted in Tabriz, Iran, in 2023, using Iranian educational F-words materials built on ideas available on the CanChild F-words Knowledge Hub. Data were collected through semistructured interviews with five mothers of children <5 years old with a developmental disability before and after attending an ‘F-words Awareness Session’ and analysed using thematic analysis.

Results

In the preinterviews, six themes (and 20 subthemes) were identified: (i) routines (5); (ii) challenges (4); (iii) parental concerns (3); (iv) child's needs and priorities (3); (v) the role of parents in satisfying needs and challenges (2); and (vi) expectations of rehabilitation (3). In the postinterview, the same six themes and four additional subthemes emerged.

Conclusion

Findings from the pilot study showed that the intervention had an impact on the attitudes and behaviours of participants. Specifically, teaching about the F-words reduced parents' emphasis on the concept of ‘normality’. Families' positive response to the ‘F-words Awareness Session’ indicates their openness to incorporating this approach into their daily lives. These findings highlight the potential benefits of utilizing the F-words in rehabilitation in Iran. Studies like these can serve as a foundation for developing effective strategies for integrating the F-words into existing rehabilitation practices in Iran.

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向伊朗发育障碍儿童的家长传播儿童发展 F 词汇：定性试点可行性研究》。

背景：对儿童残疾的态度历来侧重于生物医学的 "修复 "工作。世界卫生组织的《国际功能、残疾和健康分类》（ICF）健康框架和加拿大研究人员提出的 "F-words"（功能、健康、乐趣、朋友、家庭和未来）极大地改变了这一领域。为了探究 "F-words "理念是否会影响家长对子女能力和康复目标的看法，本定性试点研究向有发育障碍子女的伊朗家长介绍了 "F-words"：本研究于 2023 年在伊朗大不里士进行，使用的伊朗 F-words 教育材料基于 CanChild F-words Knowledge Hub 上的观点。通过对五位儿童母亲进行半结构式访谈收集数据：在预访谈中，确定了六个主题（和 20 个次主题）：(i) 常规（5）；(ii) 挑战（4）；(iii) 父母的担忧（3）；(iv) 儿童的需求和优先事项（3）；(v) 父母在满足需求和应对挑战方面的作用（2）；(vi) 对康复的期望（3）。在后访谈中，出现了同样的六个主题和另外四个次主题：试点研究结果表明，干预措施对参与者的态度和行为产生了影响。具体来说，关于 "F-words "的教学减少了家长对 "正常 "概念的重视。家庭对 "F-words 认识课程 "的积极反应表明，他们愿意将这种方法融入日常生活。这些研究结果凸显了在伊朗康复中使用 F-words 的潜在益处。类似的研究可以作为制定有效战略的基础，将 F-words 纳入伊朗现有的康复实践中。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.