The experiences of minority language users in health and social care research: A systematic review.

IF 1.9 4区医学 Q3 HEALTH POLICY & SERVICES International Journal of Health Planning and Management Pub Date : 2024-08-26 DOI:10.1002/hpm.3825

Llinos Haf Spencer, Beryl Ann Cooledge, Zoe Hoare

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Abstract

Background: The planning and management of health policy is directly linked to evidence-based research. To obtain the most rigorous results in research it is important to have a representative sample. However, ethnic minorities are often not accounted for in research. Migration, equality, and diversity issues are important priorities which need to be considered by researchers. The aim of this systematic review (SR) is to explore the literature examining the experiences of minority language users in Health and Social Care Research (HSCR).

Method: A SR of the literature was conducted. SPIDER framework and Cochrane principles were utilised to conduct the review. Five databases were searched, yielding 5311 papers initially. A SR protocol was developed and published in PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020225114analysis.

Results: Following the title and abstract review by two reviewers, 74 papers were included, and a narrative account was provided. Six themes were identified: 1. Disparities in healthcare; 2. Maternal health; 3. Mental health; 4. Methodology in health research; 5. Migrant and minority healthcare; 6. Racial and ethnic gaps in healthcare. Results showed that language barriers (including language proficiency) and cultural barriers still exist in terms of recruitment, possibly effecting the validity of the results. Several papers acknowledged language barriers but did not act to reduce them.

Conclusion: Despite research highlighting cultures over the past 40 years, there is a need for this to be acknowledged and embedded in the research process. We propose that future research should include details of languages spoken so readers can understand the sample composition to be able to interpret the results in the best way, recognising the significance of culture and language. If language is not considered as a significant aspect of research, the findings of the research cannot be rigorous and therefore the validity is compromised.

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少数民族语言使用者在医疗和社会护理研究中的经历：系统综述。

背景：卫生政策的规划和管理与循证研究直接相关。要获得最严谨的研究成果，必须要有代表性的样本。然而，少数族裔往往没有被纳入研究范围。移民、平等和多样性问题是研究人员需要考虑的重要优先事项。本系统综述（SR）的目的是探讨有关少数族裔语言使用者在健康与社会护理研究（HSCR）中的经历的文献：方法：对文献进行系统综述。采用 SPIDER 框架和 Cochrane 原则进行综述。对五个数据库进行了检索，最初共检索到 5311 篇论文。制定了SR协议，并发布在PROSPERO上：https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020225114analysis.Results：经过两名审稿人对论文标题和摘要的审阅，74 篇论文被纳入其中，并进行了叙述性说明。确定了六个主题：1.医疗保健中的差异；2.孕产妇健康；3.心理健康；4.健康研究方法；5.移民和少数民族医疗保健；6.医疗保健中的种族和民族差距。结果表明，在招聘方面仍然存在语言障碍（包括语言能力）和文化障碍，这可能会影响结果的有效性。有几篇论文承认存在语言障碍，但并未采取行动减少这些障碍：尽管过去 40 年的研究强调了文化，但仍有必要承认这一点并将其纳入研究过程。我们建议，未来的研究应包括所使用语言的详细信息，以便读者了解样本构成，从而能够以最佳方式解释研究结果，同时认识到文化和语言的重要性。如果不把语言作为研究的一个重要方面，研究结果就不可能严谨，从而影响研究的有效性。

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来源期刊

International Journal of Health Planning and Management Multiple-

CiteScore

4.50

自引率

3.70%

发文量

197

期刊介绍： Policy making and implementation, planning and management are widely recognized as central to effective health systems and services and to better health. Globalization, and the economic circumstances facing groups of countries worldwide, meanwhile present a great challenge for health planning and management. The aim of this quarterly journal is to offer a forum for publications which direct attention to major issues in health policy, planning and management. The intention is to maintain a balance between theory and practice, from a variety of disciplines, fields and perspectives. The Journal is explicitly international and multidisciplinary in scope and appeal: articles about policy, planning and management in countries at various stages of political, social, cultural and economic development are welcomed, as are those directed at the different levels (national, regional, local) of the health sector. Manuscripts are invited from a spectrum of different disciplines e.g., (the social sciences, management and medicine) as long as they advance our knowledge and understanding of the health sector. The Journal is therefore global, and eclectic.