Information needs of people who have suffered a stroke or TIA and their preferred approaches of receiving health information: A scoping review.

IF 5.8 3区医学 Q1 CLINICAL NEUROLOGY European Stroke Journal Pub Date : 2024-08-26 DOI:10.1177/23969873241272744

Jasmin Helbach, Falk Hoffmann, Nina Hecht, Christoph Heesen, Götz Thomalla, Denise Wilfling, Anne Christin Rahn

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Abstract

Purpose: We aimed to synthesize the information needs of people with stroke (PwS) in recurrent stroke prevention.

Methods: In this scoping review we searched Medline (via PubMed), CINAHL, and PsycINFO from inception to June 5, 2023, to identify all studies describing the information needs of people 18 years and older who have suffered a stroke or transient ischemic attack within the past 5 years. We included qualitative and quantitative studies from developed countries published in German or English. Data analysis was performed following Arksey and O'Malley's methodological framework for scoping reviews.

Findings: We screened 5822 records for eligibility and included 36 articles published between 1993 and 2023. None of the included studies used a comprehensive framework or defined information needs. Based on statements from PwS and their caregivers, PwS needed information on treatment, etiology, effects of stroke, prognosis, rehabilitation, discharge, life changes, care role, support options, information sources, and hospital procedures. The most frequently expressed needs were information on the treatment (77.8%) and stroke etiology (63.9%). The primary information source was healthcare professionals (85.7%), followed by written information (71.4%), family and friends (42.6%), and the internet (35.7%), with information provided directly by healthcare professionals being preferred. The timing of information transfer is often described as too early.

Conclusion: PwS are primarily interested in clinical information about stroke, for example, treatment and etiology, and less often in information about daily life, for example, rehabilitation, the role of care, or lifestyle changes. PwS prefer to receive information directly from healthcare professionals. Developing a shared understanding of PwS's information needs is crucial to implement suitable strategies and programs for dealing with these needs in clinical practice.

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中风或 TIA 患者的信息需求及其接受健康信息的首选方式：范围综述。

目的：我们旨在综述脑卒中患者（PwS）在预防复发性脑卒中方面的信息需求：在此次范围界定综述中，我们检索了 Medline（通过 PubMed）、CINAHL 和 PsycINFO 从开始到 2023 年 6 月 5 日的所有研究，以确定所有描述在过去 5 年中遭受过中风或短暂性脑缺血发作的 18 岁及以上人群信息需求的研究。我们纳入了发达国家以德语或英语发表的定性和定量研究。数据分析按照 Arksey 和 O'Malley 的范围界定综述方法框架进行：我们筛选了 5822 条符合条件的记录，并纳入了在 1993 年至 2023 年间发表的 36 篇文章。所纳入的研究均未使用综合框架或定义信息需求。根据卒中患者及其照护者的陈述，卒中患者需要的信息包括治疗、病因、卒中的影响、预后、康复、出院、生活变化、照护角色、支持选择、信息来源以及住院程序。最常表达的需求是治疗信息（77.8%）和中风病因信息（63.9%）。主要的信息来源是医护人员（85.7%），其次是书面信息（71.4%）、家人和朋友（42.6%）以及互联网（35.7%），其中医护人员直接提供的信息更受欢迎。信息传递的时间通常被描述为过早：结论：患者主要对有关中风的临床信息感兴趣，如治疗和病因，而对日常生活信息较少感兴趣，如康复、护理的作用或生活方式的改变。他们更愿意直接从医护人员那里获取信息。要在临床实践中实施适当的策略和计划来满足这些需求，对患者的信息需求达成共识是至关重要的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

European Stroke Journal Multiple-

CiteScore

7.50

自引率

6.60%

发文量

102

期刊介绍： Launched in 2016 the European Stroke Journal (ESJ) is the official journal of the European Stroke Organisation (ESO), a professional non-profit organization with over 1,400 individual members, and affiliations to numerous related national and international societies. ESJ covers clinical stroke research from all fields, including clinical trials, epidemiology, primary and secondary prevention, diagnosis, acute and post-acute management, guidelines, translation of experimental findings into clinical practice, rehabilitation, organisation of stroke care, and societal impact. It is open to authors from all relevant medical and health professions. Article types include review articles, original research, protocols, guidelines, editorials and letters to the Editor. Through ESJ, authors and researchers have gained a new platform for the rapid and professional publication of peer reviewed scientific material of the highest standards; publication in ESJ is highly competitive. The journal and its editorial team has developed excellent cooperation with sister organisations such as the World Stroke Organisation and the International Journal of Stroke, and the American Heart Organization/American Stroke Association and the journal Stroke. ESJ is fully peer-reviewed and is a member of the Committee on Publication Ethics (COPE). Issues are published 4 times a year (March, June, September and December) and articles are published OnlineFirst prior to issue publication.