Integrated service delivery for individuals with fetal alcohol spectrum disorder

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-04 DOI:10.1111/jar.13277

Katherine Flannigan, Devon C. Edwards, Lisa Murphy, Jacqueline Pei

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Abstract

Background

Individuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population.

Method

Using a multi-method approach involving a literature review, analysis of programme data, and staff interviews, we examined how ISD is enacted at a rural Canadian FASD centre, and identified facilitators, barriers, and potential impacts of ISD at the centre.

Results

We describe key elements of integrated FASD programming and identify important contextual factors and themes related to ISD barriers, facilitators, and impacts: (1) connection, (2) freedom and autonomy, (3) client-centred care, (4) learning and growth, (5) and reframing expectations.

Conclusions

This study may help to inform a roadmap for enhancing FASD service delivery and guiding FASD research and policy in Canada and beyond.

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为胎儿酒精谱系障碍患者提供综合服务。

背景：胎儿酒精谱系障碍（FASD）患者的需求非常复杂，往往需要来自多个系统的支持。越来越多的证据表明，胎儿酒精谱系障碍患者可以从综合服务提供（ISD）中获益，但人们对综合服务提供的要素和流程知之甚少：方法：我们采用文献综述、项目数据分析和员工访谈等多种方法，研究了加拿大一家农村 FASD 中心是如何开展综合服务的，并确定了综合服务在该中心的促进因素、障碍和潜在影响：我们描述了综合 FASD 计划的关键要素，并确定了与综合服务部的障碍、促进因素和影响有关的重要背景因素和主题：（1）联系，（2）自由和自主，（3）以客户为中心的护理，（4）学习和成长，（5）以及重塑期望：本研究可能有助于为加拿大及其他国家加强 FASD 服务提供和指导 FASD 研究与政策提供路线图。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.