Community engagement in a seaside town: evaluation of Good Grief Weston festival.

IF 2.7 Q2 HEALTH CARE SCIENCES & SERVICES Palliative Care and Social Practice Pub Date : 2024-09-06 eCollection Date: 2024-01-01 DOI:10.1177/26323524241274175
James Robb, Olly Clabburn, Alison Bamford, Fiona Matthews, Karen Lee, Lin Toulcher, Polly Maxwell, Nina Thomas-Bennett, Rachel Hare, Lesel Dawson, Alice Malpass, Lucy E Selman
{"title":"Community engagement in a seaside town: evaluation of Good Grief Weston festival.","authors":"James Robb, Olly Clabburn, Alison Bamford, Fiona Matthews, Karen Lee, Lin Toulcher, Polly Maxwell, Nina Thomas-Bennett, Rachel Hare, Lesel Dawson, Alice Malpass, Lucy E Selman","doi":"10.1177/26323524241274175","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Festivals play an important role in improving death and grief literacy, enabling members of the public to engage with these often-sensitive topics. Good Grief Weston festival was co-designed and delivered with the community in Weston-super-Mare, a coastal town in South-West England with high levels of socioeconomic disadvantage but rich community assets. It was held in person over 8 days in May 2023.</p><p><strong>Objectives: </strong>To evaluate the reach and impact of Good Grief Weston festival and gather data to inform future festivals.</p><p><strong>Design: </strong>Mixed methods evaluation (survey and focus groups).</p><p><strong>Methods: </strong>Online and paper surveys assessing participants' characteristics and experiences were administrated during and after the festival. Survey participants who indicated their willingness to participate were invited to attend a focus group. Focus groups were recorded, transcribed and analysed using thematic analysis. Data were collected by trained community co-researchers.</p><p><strong>Results: </strong>Approximately 3000 people attended the festival. Of 204 completed surveys, 64.5% were from women, age range ⩽15 to ⩾75 years; 88.2% identified as White; 14.9% deaf, disabled/with a chronic condition; 18.9% neurodivergent; 9.0% gay, bisexual or queer. Festival participants were entertained (70.9%), inspired (68.5%), felt part of a like-minded community (54.3%), talked to someone new (49.2%), learnt about grief/bereavement (34.3%), shared or expressed experiences (30.3%) and found out about local support (19.7%). 71.3% reported that they felt more confident talking about grief after attending. Median experience rating was 5 (IQR 0; possible range 1 = poor to 5 = excellent). In free-text comments, participants expressed appreciation for the festival and described benefits in attending. Two focus groups were conducted (<i>n</i> = 8 participants, all women), lasting c.1.5 h. Focus groups added rich descriptions of the festival's value, and data to inform the next festival.</p><p><strong>Conclusion: </strong>Findings suggest festivals of this nature can play a central role in a public health approach.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":2.7000,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11378171/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Palliative Care and Social Practice","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/26323524241274175","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0

Abstract

Background: Festivals play an important role in improving death and grief literacy, enabling members of the public to engage with these often-sensitive topics. Good Grief Weston festival was co-designed and delivered with the community in Weston-super-Mare, a coastal town in South-West England with high levels of socioeconomic disadvantage but rich community assets. It was held in person over 8 days in May 2023.

Objectives: To evaluate the reach and impact of Good Grief Weston festival and gather data to inform future festivals.

Design: Mixed methods evaluation (survey and focus groups).

Methods: Online and paper surveys assessing participants' characteristics and experiences were administrated during and after the festival. Survey participants who indicated their willingness to participate were invited to attend a focus group. Focus groups were recorded, transcribed and analysed using thematic analysis. Data were collected by trained community co-researchers.

Results: Approximately 3000 people attended the festival. Of 204 completed surveys, 64.5% were from women, age range ⩽15 to ⩾75 years; 88.2% identified as White; 14.9% deaf, disabled/with a chronic condition; 18.9% neurodivergent; 9.0% gay, bisexual or queer. Festival participants were entertained (70.9%), inspired (68.5%), felt part of a like-minded community (54.3%), talked to someone new (49.2%), learnt about grief/bereavement (34.3%), shared or expressed experiences (30.3%) and found out about local support (19.7%). 71.3% reported that they felt more confident talking about grief after attending. Median experience rating was 5 (IQR 0; possible range 1 = poor to 5 = excellent). In free-text comments, participants expressed appreciation for the festival and described benefits in attending. Two focus groups were conducted (n = 8 participants, all women), lasting c.1.5 h. Focus groups added rich descriptions of the festival's value, and data to inform the next festival.

Conclusion: Findings suggest festivals of this nature can play a central role in a public health approach.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
海滨小镇的社区参与:对 "Good Grief Weston "节的评估。
背景:节日在提高人们对死亡和悲伤的认识方面发挥着重要作用,使公众能够参与到这些通常比较敏感的话题中来。威斯顿的 "好悲伤 "节是与威斯顿-苏伯-马尔(Weston-super-Mare)的社区共同设计和举办的,威斯顿-苏伯-马尔是英格兰西南部的一个海滨小镇,社会经济条件较差,但拥有丰富的社区资产。该活动于 2023 年 5 月举行,为期 8 天:评估 "好悲伤 "威斯顿音乐节的覆盖范围和影响,并收集数据为今后的音乐节提供参考:设计:混合方法评估(调查和焦点小组):方法: 在节日期间和之后,对参与者的特征和经历进行在线和纸质调查。表示愿意参加调查的参与者被邀请参加焦点小组。对焦点小组进行记录、转录并使用主题分析法进行分析。数据由经过培训的社区共同研究人员收集:结果:约有 3000 人参加了艺术节。在 204 份填写完毕的调查问卷中,64.5% 来自女性,年龄介于 15 岁至⩽75 岁之间;88.2% 的人认为自己是白人;14.9% 的人是聋人、残疾人/慢性病患者;18.9% 的人是神经变异者;9.0% 的人是男同性恋、双性恋或同性恋者。艺术节参与者得到了娱乐(70.9%)、启发(68.5%)、感觉自己是志同道合群体的一员(54.3%)、与新朋友交谈(49.2%)、了解悲伤/丧亲(34.3%)、分享或表达经验(30.3%)以及了解当地支持(19.7%)。71.3%的人表示参加活动后在谈论悲伤问题时更有信心。体验评分的中位数为 5(IQR 为 0;可能范围为 1 = 差到 5 = 优秀)。在自由文本评论中,参与者表达了对艺术节的赞赏,并描述了参加艺术节的益处。开展了两个焦点小组(n = 8 名参与者,均为女性),持续时间约为 1.5 小时。焦点小组增加了对节日价值的丰富描述,并为下一届节日提供了数据:研究结果表明,这种性质的节日可以在公共卫生方法中发挥核心作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
Palliative Care and Social Practice
Palliative Care and Social Practice Nursing-Advanced and Specialized Nursing
CiteScore
2.90
自引率
0.00%
发文量
37
审稿时长
9 weeks
期刊最新文献
Fostering timely integrated palliative care in nursing homes through critical companionship: experiences from a Padi-Palli interventional study in France. Experience or perception: What healthcare providers need when using the Utrecht Symptom Diary-4 Dimensional, a mixed-methods study. Willingness to be present throughout patient death via medical aid in dying in a national sample of interdisciplinary US hospice clinicians: a content analysis of rationales. Adapting, implementing and evaluating a navigation intervention for older people with cancer and their family caregivers in six countries in Europe: the Horizon Europe-funded EU NAVIGATE project. Understanding end-of-life doula care provision: reporting on the design of a bereavement survey to evaluate doula support.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1