Social support within couples coping with Parkinson's disease.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES Chronic Illness Pub Date : 2024-09-09 DOI:10.1177/17423953241282665

Summer C Martin

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Abstract

Objectives: To contribute to a better understanding of the complexities of social support exchanged within couples coping with Parkinson's disease (PD), the present study aimed to identify costs and complications of support between persons with PD (PWPs) and their partners, as well as how to effectively manage such challenges.

Methods: In-depth interviews were conducted with 63 participants, including 31 PWPs and 32 partners. Interviews were transcribed and analyzed using constant comparative techniques.

Results: Participants reported the following complications and costs of social support: partners' differing approaches to coping can make support difficult, support can be perceived as identity-threatening and controlling, support can lead to dependency, and support can be draining. In addition, participants discussed effectively managing challenges of support by seeking/providing support subtly, taking the other's perspective, and relinquishing control.

Discussion: In health care and interventions, it is important for PWPs and partners to be educated about social support so that couples can anticipate these costs and complications of support and consider which management strategies are likely to be effective for them in various circumstances.

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应对帕金森病的夫妇之间的社会支持。

研究目的为了更好地了解帕金森病（PD）患者夫妇之间社会支持交换的复杂性，本研究旨在确定帕金森病患者（PWPs）及其伴侣之间支持的成本和复杂性，以及如何有效地应对这些挑战：对 63 名参与者进行了深入访谈，其中包括 31 名 PWPs 和 32 名伴侣。采用恒定比较技术对访谈内容进行了转录和分析：结果：参与者报告了以下社会支持的复杂性和代价：伴侣的不同应对方法会使支持变得困难，支持会被视为身份威胁和控制，支持会导致依赖，支持会耗费精力。此外，与会者还讨论了如何通过巧妙地寻求/提供支持、站在对方的角度考虑问题以及放弃控制来有效地应对支持所带来的挑战：讨论：在医疗保健和干预措施中，对残疾人和伴侣进行社会支持方面的教育非常重要，这样夫妻双方就可以预见到这些支持的成本和复杂性，并考虑在不同情况下哪些管理策略可能对他们有效。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.