Using a Capability Approach to Explore How People With Intellectual Disabilities Can Lead Flourishing Lives

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-09-13 DOI:10.1111/jar.13299

Sara Ryan, Rosaleen O'Brien

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Abstract

Background

People with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or opportunities to do what we value. We use this approach to explore how people with intellectual disabilities can be supported to lead flourishing lives.

Methods

Interviews and focus groups were conducted with 50 people with intellectual disabilities and 28 family carers. Data were analysed using an adapted template approach and conceptual analysis.

Results

Our analysis led to the identification of one overarching theme; ‘Doing what you love and growing’ and sub-themes; ‘Choice, opportunity and empowerment’, ‘Being out in the world’ and ‘Lowered expectations and static lives’.

Conclusion

People with intellectual disabilities can lead capability-deprived lives. Methodological and practice innovation is needed to better understand what people value and ensure they have capability sets that enable flourishing lives.

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运用能力方法探索智障人士如何过上幸福生活

背景智障人士在日常生活的许多方面仍然处于不利地位。能力方法是社会关怀研究中一种未被充分利用的方法，其核心是拥有做我们所珍视的事情的能力或机会的重要性。我们使用这种方法来探讨如何支持智障人士过上富足的生活。我们对 50 名智障人士和 28 名家人照顾者进行了访谈和焦点小组讨论。采用改编模板法和概念分析法对数据进行了分析。结果通过分析，我们确定了一个总主题："做自己喜欢的事情并不断成长"，以及几个分主题："选择、机会和赋权"、"融入世界 "和 "降低期望值和静态生活"。结论智障人士可能过着能力被剥夺的生活。我们需要在方法和实践上进行创新，以更好地了解人们的价值所在，并确保他们拥有能够让生活更美好的能力组合。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.