Visual activities of daily living survey for retinitis pigmentosa.

IF 2.1 3区医学 Q2 OPHTHALMOLOGY Japanese Journal of Ophthalmology Pub Date : 2024-09-23 DOI:10.1007/s10384-024-01122-x

Takeshi Sugawara, Kyongsun Pak, Gen Miura, Takayuki Baba

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Abstract

Purpose: To gauge the value of low-vision-specific function and activities of daily living measures (LVFAM) in the assessment of Patient Reported Outcomes (PRO) of Retinitis Pigmentosa (RP).

Study design: Prospective observation study.

Methods: The May-July 2023 Visual activities of daily living (ADL) Survey of the low-vision-specific function and activities of daily living measure (LVFAM) was conducted on 15 RP patients attending our Ophthalmology outpatient clinic. We used the better corrected visual acuity, and the better Mean Deviation (MD) values of the central 10 degrees of Humphrey's visual field as macular sensitivity, and examined the total scores after Rasch Analysis for each of the low-vision-specific function of Daily Living (LVFDL) and the low-vision-specific activities of Daily Living (LVADL) among LVFAM, as well as the relationship between the items.

Results: Age 26-78 (mean 60.8), 5 men and 10 women, corrected visual acuity of 0.01-1.0 (mean 0.45) in the better eye, macular sensitivity of 3.47-40.00 (mean 18.60) dB, mean 52.2 for LVFDL and 66.4 for LVADL. The correlations were positive for visual acuity and LVFDL and LVADL, and negative for macular sensitivity, LVFDL and LVADL. In addition, four items were scored 0 by at least 5 (33%) of the LVFDL respondents, and two items were scored 1 by at least 5 (33%) of the LVADL respondents, suggesting that the results differed by question items.

Conclusion: The LVFAM was useful not only for the total score but also for each question item in the development strategy of PROs in RP with no treatment.

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视网膜色素变性的日常生活活动调查。

目的：评估低视力特异性功能和日常生活活动测量（LVFAM）在视网膜色素变性（RP）患者报告结果（PRO）评估中的价值：研究设计：前瞻性观察研究：我们对在眼科门诊就诊的 15 名视网膜色素变性患者进行了低视力特异性功能和日常生活活动测量（LVFAM）的 2023 年 5 月至 7 月视力日常生活活动（ADL）调查。我们使用较好的矫正视力和汉弗莱视野中央 10 度的较好平均偏差（MD）值作为黄斑敏感度，并对 LVFAM 中的低视力特异性日常生活功能（LVFDL）和低视力特异性日常生活活动（LVADL）进行了 Rasch 分析后的总分以及各项目之间的关系进行了研究：年龄 26-78 岁（平均 60.8 岁），男性 5 人，女性 10 人，较好眼睛的矫正视力为 0.01-1.0 （平均 0.45），黄斑敏感度为 3.47-40.00 （平均 18.60）分贝，LVFDL 平均 52.2，LVADL 平均 66.4。视力与 LVFDL 和 LVADL 呈正相关，黄斑灵敏度、LVFDL 和 LVADL 呈负相关。此外，至少有 5 名（33%）LVFDL 受访者对 4 个项目打 0 分，至少有 5 名（33%）LVADL 受访者对 2 个项目打 1 分，这表明不同的问题项目得出的结果是不同的：结论：LVFAM 不仅对总分有用，对每个问题项目也有用，可用于制定未接受治疗的 RP 患者的 PROs 策略。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Japanese Journal of Ophthalmology 医学-眼科学

CiteScore

4.80

自引率

8.30%

发文量

审稿时长

6-12 weeks

期刊介绍： The Japanese Journal of Ophthalmology (JJO) was inaugurated in 1957 as a quarterly journal published in English by the Ophthalmology Department of the University of Tokyo, with the aim of disseminating the achievements of Japanese ophthalmologists worldwide. JJO remains the only Japanese ophthalmology journal published in English. In 1997, the Japanese Ophthalmological Society assumed the responsibility for publishing the Japanese Journal of Ophthalmology as its official English-language publication. Currently the journal is published bimonthly and accepts papers from authors worldwide. JJO has become an international interdisciplinary forum for the publication of basic science and clinical research papers.