The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study.

IF 2.5 2区医学 Q2 HEALTH CARE SCIENCES & SERVICES BMC Palliative Care Pub Date : 2024-10-04 DOI:10.1186/s12904-024-01569-2

C Y Joren, M C Kars, L C M Kremer, J C van Dijk, A M Habing, A M Tijs, A A Trampe, A A E Verhagen, J L Aris-Meijer

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Abstract

Background: To ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.

Methods: Two semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.

Results: Participants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.

Conclusion: The purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.

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医护人员认为儿科姑息关怀中个人护理计划的目的：一项定性研究。

背景：为了确保高质量的儿科姑息关怀（PPC），并使医护专业人员（HCPs）能够为患有局限生命或危及生命疾病的儿童及其家庭提供以人为本的关怀，儿科姑息关怀的个体关怀计划（ICP）应运而生。然而，在实践中，PPC 的 ICP 并未用于所有需要 PPC 的儿童。因此，为了确保 ICP 能在实践中得到充分实施，有必要深入了解 HCP 希望在 PPC 中使用 ICP 的原因、问题和儿童：方法：对 15 名在儿童疾病防治方面经验丰富的医护人员进行了两次半结构化焦点小组访谈。对数据进行了主题分析：结果：参与者希望使用 ICP 与家长共同制定儿童当前和未来的护理和治疗计划。通过这样做，他们希望实现护理的协调性和连续性，实现共同决策，并在儿童护理过程中为家长和其他医护人员提供支持。与会者认为 ICP 也可用于对患有复杂慢性疾病的儿童的护理：结论：医护人员希望将 ICP 用于 PPC 的目的比 ICP 用于 PPC 的目的更为广泛。未来的研究应重点关注在全科护理实践中使用 ICP 是否能实现这些目的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-

CiteScore

4.60

自引率

9.70%

发文量

201

审稿时长

21 weeks

期刊介绍： BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.