Novel linkage of the Society of Thoracic Surgeons database and hospital electronic health records.

IF 0.9 4区医学 Q4 CARDIAC & CARDIOVASCULAR SYSTEMS Cardiology in the Young Pub Date : 2024-10-08 DOI:10.1017/S1047951124026520

Christopher A Atkins, Joseph R Nellis, Andrew M Vekstein, Alfred D'Ottavio, Jesse M DeLaRosa, Karen Chiswell, Joseph W Turek, Ziv Beckerman, Cheryl Raskind Hood, Wendy M Book, Timothy M Hoffman, Robert J Hartman, Michael Walsh, Jennifer S Li, Karl F Welke

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Abstract

Background: Society of Thoracic Surgeons Congenital Heart Surgery Database is the largest congenital heart surgery database worldwide but does not provide information beyond primary episode of care. Linkage to hospital electronic health records would capture complications and comorbidities along with long-term outcomes for patients with CHD surgeries. The current study explores linkage success between Society of Thoracic Surgeons Congenital Heart Surgery Database and electronic health record data in North Carolina and Georgia.

Methods: The Society of Thoracic Surgeons Congenital Heart Surgery Database was linked to hospital electronic health records from four North Carolina congenital heart surgery using indirect identifiers like date of birth, sex, admission, and discharge dates, from 2008 to 2013. Indirect linkage was performed at the admissions level and compared to two other linkages using a "direct identifier," medical record number: (1) linkage between Society of Thoracic Surgeons Congenital Heart Surgery Database and electronic health records from a subset of patients from one North Carolina institution and (2) linkage between Society of Thoracic Surgeons data from two Georgia facilities and Georgia's CHD repository, which also uses direct identifiers for linkage.

Results: Indirect identifiers successfully linked 79% (3692/4685) of Society of Thoracic Surgeons Congenital Heart Surgery Database admissions across four North Carolina hospitals. Direct linkage techniques successfully matched Society of Thoracic Surgeons Congenital Heart Surgery Database to 90.2% of electronic health records from the North Carolina subsample. Linkage between Society of Thoracic Surgeons and Georgia's CHD repository was 99.5% (7,544/7,585).

Conclusions: Linkage methodology was successfully demonstrated between surgical data and hospital-based electronic health records in North Carolina and Georgia, uniting granular procedural details with clinical, developmental, and economic data. Indirect identifiers linked most patients, consistent with similar linkages in adult populations. Future directions include applying these linkage techniques with other data sources and exploring long-term outcomes in linked populations.

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胸外科医师协会数据库与医院电子病历的新链接。

背景：美国胸外科医师协会先天性心脏病手术数据库是全球最大的先天性心脏病手术数据库，但该数据库并不提供主要护理过程以外的信息。通过与医院电子健康记录的链接，可以获取先天性心脏病手术患者的并发症和合并症以及长期疗效。本研究探讨了北卡罗来纳州和佐治亚州胸外科医师协会先天性心脏病手术数据库与电子病历数据之间的链接成功率：方法：使用出生日期、性别、入院和出院日期等间接标识符，将胸外科医师协会先天性心脏病手术数据库与北卡罗来纳州四家先天性心脏病手术医院的电子健康记录进行链接，链接时间为 2008 年至 2013 年。在入院水平上进行了间接连接，并与使用 "直接标识符"（病历号）的另外两种连接进行了比较：（1）胸外科医师协会先天性心脏病手术数据库与北卡罗来纳州一家机构患者子集的电子健康记录之间的连接；（2）胸外科医师协会来自佐治亚州两家机构的数据与佐治亚州 CHD 储存库之间的连接，后者也使用直接标识符进行连接：结果：间接标识符成功连接了北卡罗来纳州四家医院中79%（3692/4685）的胸外科医师学会先天性心脏病手术数据库入院患者。直接链接技术成功地将胸外科医师学会先天性心脏病手术数据库与北卡罗来纳州子样本中 90.2% 的电子病历进行了匹配。胸外科医师协会与佐治亚州先天性心脏病资料库的链接率为 99.5% (7,544/7,585)：结论：北卡罗来纳州和佐治亚州的外科手术数据与医院电子健康记录之间的链接方法已得到成功验证，将精细的手术细节与临床、发展和经济数据结合在一起。间接标识符将大多数患者联系起来，这与成人群体中的类似联系是一致的。未来的发展方向包括将这些链接技术应用于其他数据源，并探索链接人群的长期结果。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Cardiology in the Young 医学-小儿科

CiteScore

1.70

自引率

10.00%

发文量

715

审稿时长

4-8 weeks

期刊介绍： Cardiology in the Young is devoted to cardiovascular issues affecting the young, and the older patient suffering the sequels of congenital heart disease, or other cardiac diseases acquired in childhood. The journal serves the interests of all professionals concerned with these topics. By design, the journal is international and multidisciplinary in its approach, and members of the editorial board take an active role in the its mission, helping to make it the essential journal in paediatric cardiology. All aspects of paediatric cardiology are covered within the journal. The content includes original articles, brief reports, editorials, reviews, and papers devoted to continuing professional development.