[Utilization of registers to create an evidence-based approach in catastrophes and civil defence].

Sebastian Imach, Rolf Lefering, Benny Kölbel, Maximilian Wolf, Lisa Hackenberg, Dan Bieler
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Abstract

Medical data registers are a key instrument of medical care research and a valuable tool for medical quality assurance. The structured plausibility tested documentation of large case numbers on a longitudinally oriented time axis with different points in time of data acquisition enables statements to be made on numerous relevant outcomes, not only the mortality of patients. For incidents outside the daily routine care in trauma surgery, such as natural disasters, accidents with multiple casualties and nonmilitary treatment of the domestic population in defence situations, such registers can provide data-based recommendations for action. These data, mainly obtained from routine traumatological treatment, enable a targeted resource management in the abovenamed incidents, which are associated with mass casualties. Due to the utilization of registers from the military field or from international registers, the perspective is additionally extended with respect to treatment strategies and injury patterns. Whether data can also be generated in a suitable manner for the abovenamed registers in specific disaster situations and can provide a direct gain of knowledge from the incident, must be critically discussed. The maintenance of the register datasets is time-consuming and has been subjected to a more stringent regulation at least since May 2018, when the European Union General Data Protection Regulation (EU-GDPR) came into force. The future Register Act in Germany will hopefully achieve greater simplification in the documentation of routine data.

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[在灾难和民防中利用登记册创建循证方法]。
医疗数据登记册是医疗保健研究的重要工具,也是医疗质量保证的重要工具。在纵向的时间轴上,以不同的时间点采集数据,对大量病例进行结构化的可信度测试记录,可以对许多相关结果做出说明,而不仅仅是病人的死亡率。对于创伤外科日常常规护理之外的事件,如自然灾害、多人伤亡的事故以及国防局势下对国内人口的非军事治疗,此类登记册可以提供基于数据的行动建议。这些数据主要是从常规创伤治疗中获得的,可以在与大规模伤亡有关的上述事件中进行有针对性的资源管理。由于使用了军事领域或国际登记册,因此在治疗策略和伤害模式方面的视角也得到了扩展。至于在特定的灾难情况下,是否也能以适当的方式为非具名登记册生成数据,并从事件中直接获取知识,必须进行认真的讨论。登记册数据集的维护非常耗时,至少自 2018 年 5 月《欧盟通用数据保护条例》(EU-GDPR)生效以来,登记册数据集的维护受到了更严格的监管。德国未来的《登记法》将有望实现常规数据记录的进一步简化。
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