Combined Pediatric Rheumatology/Dermatology Clinics: Benefits and Challenges.

IF 16.4 1区 化学 Q1 CHEMISTRY, MULTIDISCIPLINARY Accounts of Chemical Research Pub Date : 2024-10-18 DOI:10.1111/pde.15774
Jessica L Crockett, Susan Kim, Emily von Scheven, Anubhav Mathur, Kelly M Cordoro
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Abstract

Background/objectives: Integrated care models, like combined rheumatology/dermatology clinics (RDCs), facilitate efficient coordination between specialists and provide comprehensive care. Given the limited literature on pediatric RDC logistics, outcomes, benefits and, challenges, we comprehensively characterized our patient cohort at the UCSF Benioff Children's Hospital RDC and surveyed pediatric dermatologists participating in RDCs.

Methods: We retrospectively reviewed 71 patients new to the UCSF Pediatric RDC between September 2017 and September 2023. A survey was distributed in 2024 to 17 dermatologists in North America, each representing a unique pediatric RDC.

Results: 69% of patients (49/71) were female. Seventeen (24%) presented without a known diagnosis; the first RDC visit established a diagnosis for 7 of them (41%). Of patients with a previously established diagnosis, initial RDC evaluation confirmed it in 52 (96%) and revised it for 2 (4%). The most encountered diagnoses were linear morphea (33%), lupus (23%), and psoriasis (13%). New systemic therapy was prescribed for 23% of patients, and additional work-up was recommended via skin biopsy (8%) and imaging (28%). Survey results revealed all pediatric RDCs include trainees, but only 59% (10/17) receive administrative support. All agreed that RDCs are valuable for patient care and most (15/17, 88%) felt that the RDC was a valuable use of their time.

Conclusions: Pediatric RDCs are valuable for consensus diagnosis, streamlined evaluation, and management of complex patients. Though clinical and administrative support for RDCs is generally poor, RDCs are valuable to patients, a good use of time for clinicians, and offer educational opportunities for team members.

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儿科风湿病学/皮肤病学联合诊所:优势与挑战。
背景/目的:风湿病学/皮肤病学联合诊所(RDCs)等综合医疗模式有助于专家之间的有效协调,并提供全面的医疗服务。鉴于有关儿科 RDC 的后勤、结果、益处和挑战的文献有限,我们对加州大学旧金山分校贝尼奥夫儿童医院 RDC 的患者群进行了全面描述,并对参与 RDC 的儿科皮肤科医生进行了调查:我们回顾性审查了 2017 年 9 月至 2023 年 9 月期间新到加州大学旧金山分校儿科 RDC 的 71 名患者。2024 年,我们向北美的 17 位皮肤科医生发放了调查问卷,每位医生代表一个独特的儿科 RDC:69%的患者(49/71)为女性。17名患者(24%)在就诊时没有明确诊断;其中7名患者(41%)的首次RDC就诊确定了诊断。在之前已确诊的患者中,有 52 人(96%)的首次 RDC 评估证实了诊断,2 人(4%)的诊断被修改。最多的诊断是线性斑秃(33%)、红斑狼疮(23%)和银屑病(13%)。23%的患者接受了新的系统治疗,建议通过皮肤活检(8%)和影像学检查(28%)进行进一步检查。调查结果显示,所有儿科 RDC 都包括受训人员,但只有 59% 的 RDC(10/17)获得了行政支持。所有人都认为 RDC 对患者护理很有价值,大多数人(15/17,88%)认为 RDC 可以宝贵地利用他们的时间:结论:儿科 RDC 对于达成一致诊断意见、简化评估和管理复杂病人很有价值。虽然对 RDC 的临床和行政支持普遍较差,但 RDC 对患者很有价值,对临床医生来说也能很好地利用时间,并为团队成员提供了教育机会。
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来源期刊
Accounts of Chemical Research
Accounts of Chemical Research 化学-化学综合
CiteScore
31.40
自引率
1.10%
发文量
312
审稿时长
2 months
期刊介绍: Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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