Stories of chronic illness: exploring qualitative data through poetic transcriptions.

IF 1.2 3区 社会学 0 HUMANITIES, MULTIDISCIPLINARY Medical Humanities Pub Date : 2024-10-14 DOI:10.1136/medhum-2024-012918
Margaret Simmons, Gabriela Carolus, Mahima Kalla
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Abstract

As a research technique, poetic transcription transforms people's stories and enables deeper analysis and engagement between participants, readers and researchers. Chronic illness is often characterised as a 'biographical disruption', which may threaten a patient's self-identity and equanimity. Such disruptions often influence patients' perceptions of imminent life changes, social relationships and cognitive and material resources. Thus, poetic transcription offers a valuable tool for making sense of complex illnesses and lived experiences. This paper demonstrates how raw interview data can be reconstructed into a poetic format to highlight the nuances of people's lived illness experiences, which may remain elusive to them and others. A qualitative survey was conducted with a small group of patient participants, eliciting chronic illness narratives analysed through poetic transcription. Poetic transcription becomes a rigorous and legitimate qualitative research method through multiple iterations and extensive data engagement. Our main themes are focused on biographical disruption, temporality, humour, voice and ableism.

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慢性病的故事:通过诗歌转录探索定性数据。
作为一种研究技术,诗歌转录改变了人们的故事,使参与者、读者和研究人员之间能够进行更深入的分析和交流。慢性疾病通常被描述为 "传记中断",可能会威胁到患者的自我认同和平静。这种干扰通常会影响患者对即将发生的生活变化、社会关系以及认知和物质资源的感知。因此,诗意转录为理解复杂的疾病和生活经历提供了宝贵的工具。本文展示了如何将原始访谈数据以诗歌的形式重新构建,以突出人们疾病生活经历中的细微差别,而这些细微差别对于他们和其他人来说可能仍然是难以捉摸的。我们对一小群患者参与者进行了定性调查,通过诗歌转录分析了他们的慢性病叙述。通过多次迭代和广泛的数据参与,诗歌转录成为一种严谨、合法的定性研究方法。我们的主要研究主题集中在传记中断、时间性、幽默、声音和能力主义等方面。
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来源期刊
Medical Humanities
Medical Humanities HUMANITIES, MULTIDISCIPLINARY-
CiteScore
2.60
自引率
8.30%
发文量
59
期刊介绍: Occupational and Environmental Medicine (OEM) is an international peer reviewed journal concerned with areas of current importance in occupational medicine and environmental health issues throughout the world. Original contributions include epidemiological, physiological and psychological studies of occupational and environmental health hazards as well as toxicological studies of materials posing human health risks. A CPD/CME series aims to help visitors in continuing their professional development. A World at Work series describes workplace hazards and protetctive measures in different workplaces worldwide. A correspondence section provides a forum for debate and notification of preliminary findings.
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