When do parents report their child's administrative ADHD diagnosis? A utilisation-based analysis from the consortium project INTEGRATE-ADHD.

Journal of health monitoring Pub Date : 2024-09-18 eCollection Date: 2024-09-01 DOI:10.25646/12676
Stefan Pfeifer, Ann-Kristin Beyer, Lilian Beck, Heike Hölling, Marcel Romanos, Thomas Jans, Anne Kaman, Ulrike Ravens-Sieberer, Julian Witte, Peter Heuschmann, Cordula Riederer, Robert Schlack
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Abstract

Background: This article examines discrepancies in the frequency of diagnoses of attention-deficit/hyperactivity disorder (ADHD) in children and adolescents in Germany using information on health care utilisation from both administrative and parent-reported survey data linked at person level.

Methods: 5,461 parents of 0- to 17-year-olds insured with DAK-Gesundheit in 2020 and being registered with a confirmed administrative ADHD diagnosis (ICD-10 F90.0-9) in at least one quarter in 2020 (M1Q criterion) were surveyed online on their child's ADHD diagnosis, utilisation of specialist care and therapeutic service providers. With regard to the presence of a parental report of the child's documented ADHD diagnosis, administrative data and survey data were bi- and multivariately analysed.

Results: The response rate was 21.5 %. ADHD diagnoses were given more frequently in the context of paediatric care, but in the multivariable model with the administrative data only the diagnosis made by mental health professionals (OR = 2.78), in the model with the survey data only utilisation of mental health professionals (OR = 2.99) positively predicted the parental diagnostic report. With regard to the utilisation of therapeutic service providers, only the utilisation of occupational therapy was associated with the parental report of the diagnosis in both data sources.

Conclusions: Parental non-reporting of a child's administrative ADHD diagnosis in survey studies can be in part be explained by utilisation characteristics.

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家长何时报告其子女的多动症行政诊断?联合项目 INTEGRATE-ADHD 基于使用情况的分析。
背景:本文利用行政管理数据和家长报告的个人层面调查数据中的医疗保健使用信息,研究了德国儿童和青少年注意力缺陷/多动症(ADHD)诊断频率的差异。方法:对 5,461 名在 2020 年投保 DAK-Gesundheit 且在 2020 年至少一个季度(M1Q 标准)登记确诊为行政性多动症(ICD-10 F90.0-9)的 0 至 17 岁儿童的父母进行了在线调查,内容涉及其子女的多动症诊断、专科医疗和治疗服务提供商的使用情况。我们对行政数据和调查数据进行了双变量和多变量分析:答复率为 21.5%。在儿科护理中,多动症的诊断更常见,但在行政数据的多变量模型中,只有精神卫生专业人员的诊断(OR = 2.78),在调查数据的模型中,只有精神卫生专业人员的使用(OR = 2.99)对家长的诊断报告有积极的预测作用。关于治疗服务提供者的使用情况,在两种数据来源中,只有职业疗法的使用情况与父母的诊断报告相关:结论:在调查研究中,家长未报告儿童多动症行政诊断的部分原因可以通过使用特点来解释。
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Diabetes mellitus, cardiovascular and chronic respiratory diseases in Germany and Europe - results of the European Health Interview Survey (EHIS 3, 2018 - 2020). Utilisation of medical services in Germany and Europe - Results of the European Health Interview Survey (EHIS 3, 2018 - 2020). A societal challenge with high public health relevance: ADHD in children and adolescents in Germany. ADHD in children and adolescents: Guideline-based online assessment in the consortium project INTEGRATE-ADHD. Differences in frequency between administrative and parent-reported ADHD diagnosis data of children and adolescents taking sociodemographic characteristics into account - Results from the consortium project INTEGRATE-ADHD.
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