{"title":"Development, validity and reliability of the “Multiple sclerosis stigma scale”","authors":"Hande Sariahmetoglu , Feray Gungor , Zeynep Ezgi Kurtpinar , Devrimsel Harika Ertem , Mesrure Koseoglu , Rabia Gokcen Gozubatik Celik , Burcu Yuksel , Aysun Soysal","doi":"10.1016/j.msard.2024.105945","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Stigma in multiple sclerosis (MS) refers to the negative attitudes, beliefs, and behaviors that patients may encounter as a result of their diagnosis. Patients who hold stigmatizing beliefs are more prone to experiencing anxiety and depression, social isolation, and poor treatment adherence. To mitigate the adverse effects of stigma, it is crucial to assess stigmatizing beliefs; however, there is currently no specific stigma scale available for MS.</div></div><div><h3>Objective</h3><div>The aim of this study was to develop and validate “Multiple Sclerosis Stigma Scale (MSSS)”.</div></div><div><h3>Methods</h3><div>This methodological study was conducted in three phases. In the first phase, the concept of stigma in MS was defined. In the second phase, an item pool was generated based on the findings from the first phase. In the third phase, psychometric properties of the scale were evaluated, including face and content validity, construct validity, convergent validity and reliability.</div></div><div><h3>Results</h3><div>After evaluating the validity (face, content, and construct validity) and reliability, the initial item pool of 276 items was reduced to 12 items. Factor analysis revealed two factors: discrimination and disclosure. The developed questionnaire had excellent reliability, with an internal consistency coefficient of 0.88 and a stability coefficient of 0.87.</div></div><div><h3>Conclusion</h3><div>The 12-item MSSS is valid and reliable for assessing the level of stigma in Turkish people with MS.</div></div>","PeriodicalId":18958,"journal":{"name":"Multiple sclerosis and related disorders","volume":"92 ","pages":"Article 105945"},"PeriodicalIF":2.9000,"publicationDate":"2024-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Multiple sclerosis and related disorders","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2211034824005212","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Background
Stigma in multiple sclerosis (MS) refers to the negative attitudes, beliefs, and behaviors that patients may encounter as a result of their diagnosis. Patients who hold stigmatizing beliefs are more prone to experiencing anxiety and depression, social isolation, and poor treatment adherence. To mitigate the adverse effects of stigma, it is crucial to assess stigmatizing beliefs; however, there is currently no specific stigma scale available for MS.
Objective
The aim of this study was to develop and validate “Multiple Sclerosis Stigma Scale (MSSS)”.
Methods
This methodological study was conducted in three phases. In the first phase, the concept of stigma in MS was defined. In the second phase, an item pool was generated based on the findings from the first phase. In the third phase, psychometric properties of the scale were evaluated, including face and content validity, construct validity, convergent validity and reliability.
Results
After evaluating the validity (face, content, and construct validity) and reliability, the initial item pool of 276 items was reduced to 12 items. Factor analysis revealed two factors: discrimination and disclosure. The developed questionnaire had excellent reliability, with an internal consistency coefficient of 0.88 and a stability coefficient of 0.87.
Conclusion
The 12-item MSSS is valid and reliable for assessing the level of stigma in Turkish people with MS.
期刊介绍：
Multiple Sclerosis is an area of ever expanding research and escalating publications. Multiple Sclerosis and Related Disorders is a wide ranging international journal supported by key researchers from all neuroscience domains that focus on MS and associated disease of the central nervous system. The primary aim of this new journal is the rapid publication of high quality original research in the field. Important secondary aims will be timely updates and editorials on important scientific and clinical care advances, controversies in the field, and invited opinion articles from current thought leaders on topical issues. One section of the journal will focus on teaching, written to enhance the practice of community and academic neurologists involved in the care of MS patients. Summaries of key articles written for a lay audience will be provided as an on-line resource.
A team of four chief editors is supported by leading section editors who will commission and appraise original and review articles concerning: clinical neurology, neuroimaging, neuropathology, neuroepidemiology, therapeutics, genetics / transcriptomics, experimental models, neuroimmunology, biomarkers, neuropsychology, neurorehabilitation, measurement scales, teaching, neuroethics and lay communication.
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