Co-construction of an instructional module to improve the understanding of cancer screening by people with intellectual disabilities: Strategic choices

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Patient Education and Counseling Pub Date : 2024-10-16 DOI:10.1016/j.pec.2024.108471

Geneviève Petitpierre , Amaëlle Otandault , Elodie Neumann-Michel , Elisangela Olivier , Marc Palpacuer , Anaïs Lecluse , Xavier Heber-Suffrin , Brigitte Trétarre , Chris Serrand , Daniel Satgé

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Abstract

Objective

People with intellectual disabilities (ID) have difficulty in accessing oral or written health information presented in a conventional manner what compromises prevention. This study aims to develop accessible information on breast, cervical and colorectal cancer screening for people with ID.

Method

The instructional material has been developed collaboratively by a team involving representatives from different scientific disciplines (medical and psychoeducational) and people with ID. Five principles guided its elaboration, i.e. coconstruction, multimodality, phasing, socio-cognitivism and accessibility.

Results

The material created is a 5-component module including a 20-minute easy-toread and understand oral presentation with a slideshow, a workshop that encourages manipulation and discussion, a booklet to take away, a film to consolidate information and a questionnaire.

Conclusion

Providing accessible information is considered a key action in reestablishing equality in access to cancer health care and preventing a cascade of consequences. The co-construction of the module ensures its social and ecological validity. An interventional study is underway to verify its efficacy.

Practical implication

The best practices for cancer prevention endorse spending enough time to discuss screening. This accessible module can be used to provide people with ID basic information about screening, increase their adherence, and facilitate the discussion on this issue.

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共同构建教学模块，提高智障人士对癌症筛查的认识：战略选择。

目的：智障人士（ID）难以获得以常规方式提供的口头或书面健康信息，这影响了他们的预防工作。本研究旨在为智障人士开发无障碍的乳腺癌、宫颈癌和结直肠癌筛查信息：该教材由一个团队合作开发，团队成员包括来自不同科学学科（医学和心理教育）的代表和智障人士。编写过程中遵循了五项原则，即共同构建、多模态、分阶段、社会认知和无障碍：所制作的材料由 5 个模块组成，包括一个 20 分钟易读易懂的口头介绍和幻灯片、一个鼓励操作和讨论的工作坊、一本可带走的小册子、一部巩固信息的电影和一份调查问卷：结论：提供可获取的信息被认为是重建平等获得癌症医疗保健和防止一连串后果的关键行动。该模块的共同构建确保了其社会和生态有效性。目前正在进行一项干预研究，以验证其有效性：实际意义：癌症预防的最佳实践赞同花足够的时间讨论筛查问题。这一易于使用的模块可用于向身份证持有者提供有关筛查的基本信息，提高他们的依从性，并促进有关这一问题的讨论。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.60

自引率

11.40%

发文量

384

审稿时长

46 days

期刊介绍： Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.