Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-10-24 DOI:10.1111/jar.13311

Ashley Scott, Ryan Gould, Liam Quidore, Keryden Koeut-Futch, Emily Bock, Prisha Sujin Kumar, Staci Christensen, Augusta Edouard, Benjamin Golden, Eden Rapp, Kaethe Sigelko, Alexis Sokoloff, Caley Versfelt, Eric Rubenstein

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Abstract

Background

At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome.

Methods

Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms.

Results

Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms.

Conclusion

Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.

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唐氏综合症成人的压力、焦虑与应对：一项探索性合作研究。

背景：至少有一半患有唐氏综合症的儿童和成人在其一生中会有重大的心理健康问题，但很少有研究直接询问唐氏综合症患者的经历。我们采用共同研究的模式来探讨唐氏综合症成人的焦虑、压力和应对方法：我们的研究小组和成年唐氏综合症患者共同开展了一项关于成年唐氏综合症患者心理健康的在线调查。我们对定量数据进行了分析，并对应对机制进行了主题分组：60名患有唐氏综合症的成年人完成了调查，平均年龄为30岁，55%的受访者有工作。约 80% 的受访者表示有压力，75% 的受访者表示有焦虑。有工作的受访者更倾向于使用社会应对机制：向患有唐氏综合症的成年人征询有关其心理健康的意见可以提供有价值的见解。心理健康是唐氏综合症患者应该关注的问题。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.