Measuring Transition Readiness of Patients After Transfer from Pediatric to Adult Care in Rheumatology.

IF 1.3 Q3 PEDIATRICS Turkish archives of pediatrics Pub Date : 2024-09-02 DOI:10.5152/TurkArchPediatr.2024.24085
Ali Yağiz Ayla, Helin İdil Beşiroğlu, Feyza Nur Azman, Buğra Han Egeli, Hatice Eren, Sıla Öztürk, Sercan Ergün, Amra Adrovic, Kenan Barut, Fatih Haslak, Sezgin Şahin, Mehmet Yıldız, Huri Özdoğan, Özgür Kasapçopur, Serdal Ugurlu
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Abstract

Transitional care is essential to maintain the continuity of care in younger patients with rheumatic diseases. In this study, we aimed to assess the transition readiness of rheumatology patients who had already transferred from pediatric to adult care using a questionnaire. We included young adult rheumatology patients who had already transferred to adult rheumatology care. The Transition Readiness Assessment Questionnaire (TRAQ) was used in the adult rheumatology clinic to assess the patients' readiness; a retrospective chart review was conducted to include diagnosis, age at diagnosis, age at transfer, and current age. Three hundred and ten patients (184 female and 126 male) participated in this study. The mean age at diagnosis, the mean age at transfer, and the mean age at the time of the study were 10.7 ± 4.29, 21.1 ± 1.69, and 24.0 ± 2.26 years, respectively. Most of the patients had familial Mediterranean fever, followed by arthritis, connective tissue disorders, and other diseases. Tracking health issues was the lowest-scored domain. Females scored significantly higher than males in the tracking health issue domain (P = .006) and managing health issue domain (P = .028) but not in the overall TRAQ score (P = .053). Patients in different diagnosis and transfer age groups scored similarly across the domains. In this study, females performed better than males in 2 domains of the TRAQ questionnaire. Diagnoses or transfer age groups were not associated with TRAQ outcomes.

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衡量风湿病患者从儿科转到成人科后的过渡准备情况。
过渡护理对于保持年轻风湿病患者护理的连续性至关重要。在这项研究中,我们通过问卷调查的方式评估了已经从儿科转到成人风湿病科的风湿病患者的过渡准备情况。我们将已经转入成人风湿病治疗的年轻成人风湿病患者纳入其中。我们在成人风湿病诊所使用了 "转院准备评估问卷"(TRAQ)来评估患者的转院准备情况;我们还对病历进行了回顾性检查,包括诊断、诊断时的年龄、转院时的年龄以及目前的年龄。共有 310 名患者(184 名女性和 126 名男性)参与了这项研究。诊断时的平均年龄、转院时的平均年龄和研究时的平均年龄分别为(10.7 ± 4.29)岁、(21.1 ± 1.69)岁和(24.0 ± 2.26)岁。大多数患者患有家族性地中海热,其次是关节炎、结缔组织病和其他疾病。追踪健康问题是得分最低的领域。女性在追踪健康问题领域(P = .006)和管理健康问题领域(P = .028)的得分明显高于男性,但在TRAQ总分上却不尽相同(P = .053)。不同诊断和转院年龄段的患者在各领域的得分相似。在本研究中,女性在 TRAQ 问卷的 2 个领域中的表现优于男性。诊断或转院年龄组与TRAQ结果无关。
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