Natasha Yap, Vanessa Wong, Catherine Morton, Richard de Boer, Sally Baron-Hay, Robert Blum, Benjamin Forster, Susan Chua, Kerrie Clarke, Katharine Cuff, Michael Green, Elgene Lim, Kelly Mok, Louise Nott, Michelle Nottage, Ali Tafreshi, Daphne Tsoi, Anthony Uccellini, Peter Gibbs, Sheau Wen Lok
{"title":"Medicine Access Programmes: what do patients think – a patient-reported outcome study on ribociclib in metastatic breast cancer in Australia","authors":"Natasha Yap, Vanessa Wong, Catherine Morton, Richard de Boer, Sally Baron-Hay, Robert Blum, Benjamin Forster, Susan Chua, Kerrie Clarke, Katharine Cuff, Michael Green, Elgene Lim, Kelly Mok, Louise Nott, Michelle Nottage, Ali Tafreshi, Daphne Tsoi, Anthony Uccellini, Peter Gibbs, Sheau Wen Lok","doi":"10.1111/imj.16536","DOIUrl":null,"url":null,"abstract":"<p>This study evaluated patient-reported outcomes (PROs) of Medicine Access Programmes (MAPs) for Australian metastatic breast cancer patients on ribociclib. Limited patient awareness of MAP enrolment was identified, emphasising the need for improved education and consent processes. Most patients expressed gratitude for accessing non-funded medications and perceived enhanced medication adherence as a key benefit. Integrating PRO data with real-world registry data provides comprehensive insight for future MAP development.</p>","PeriodicalId":13625,"journal":{"name":"Internal Medicine Journal","volume":"54 11","pages":"1894-1897"},"PeriodicalIF":1.8000,"publicationDate":"2024-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Internal Medicine Journal","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/imj.16536","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"MEDICINE, GENERAL & INTERNAL","Score":null,"Total":0}
引用次数: 0
Abstract
This study evaluated patient-reported outcomes (PROs) of Medicine Access Programmes (MAPs) for Australian metastatic breast cancer patients on ribociclib. Limited patient awareness of MAP enrolment was identified, emphasising the need for improved education and consent processes. Most patients expressed gratitude for accessing non-funded medications and perceived enhanced medication adherence as a key benefit. Integrating PRO data with real-world registry data provides comprehensive insight for future MAP development.
期刊介绍：
The Internal Medicine Journal is the official journal of the Adult Medicine Division of The Royal Australasian College of Physicians (RACP). Its purpose is to publish high-quality internationally competitive peer-reviewed original medical research, both laboratory and clinical, relating to the study and research of human disease. Papers will be considered from all areas of medical practice and science. The Journal also has a major role in continuing medical education and publishes review articles relevant to physician education.
京公网安备 11010802042870号
京ICP备2023020795号-1
分享
求助内容：
应助结果提醒方式：
扫码关注我们
