Impact of childhood psoriasis on children and parents during transition to adolescence: An interpretative phenomenological analysis.

IF 3.5 2区 心理学 Q1 PSYCHOLOGY, CLINICAL British Journal of Health Psychology Pub Date : 2024-10-29 DOI:10.1111/bjhp.12763
Marianne Day, Connor Heapy, Paul Norman, Lisa-Marie Emerson, Ruth Murphy, Olivia Hughes, Andrew R Thompson
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Abstract

Objectives: Psoriasis is a chronic skin condition that can develop at any age. Childhood psoriasis can lead to stigmatization and reduced quality of life in children and parents. This study aimed to gather a detailed family-level understanding of the experience of childhood psoriasis during the time of transition to adolescence.

Design: A multi-perspectival interpretative phenomenological analysis (IPA) was used.

Methods: Sixteen semi-structured interviews with eight parent-child dyads were conducted and analysed in accordance with IPA principles.

Results: Three superordinate themes and three sub-themes were identified: 1. 'Transition and transaction' including: 1.1 'Shifting responsibilities and self-efficacy'; 2. 'Stigma and social impact'; and 3. 'The treatment journey' including: 3.1 'Finding an effective treatment', 3.2 'Coping with on-going management'. Uncertainties surrounding treatment options were an initial focus of difficulty for families. In adolescence, the difficulty shifted to be more identity focussed as the responsibility for disease management and the increased awareness on body image posed added challenges. Both parents and children described visibility and stigma as the most distressing aspects of living with psoriasis and experienced negative emotions that resurfaced during adolescence.

Conclusions: This study suggests that childhood psoriasis can have a significant impact on children, particularly as they begin to transition to adolescence. Findings also highlight the burden of psoriasis for parents. As such, psychological interventions (such as adapted forms of mindfulness-based Cognitive-Behavioural-Therapy) are needed to target and reduce stress. Such interventions are likely to require a systemic focus and support validation of the real impact and fear of stigmatization.

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儿童银屑病对儿童和家长在青春期过渡期的影响:解释性现象学分析。
目的:银屑病是一种慢性皮肤病,可在任何年龄发病。儿童银屑病可导致儿童和家长蒙受耻辱并降低生活质量。本研究旨在从家庭层面详细了解儿童银屑病患者在向青春期过渡期间的经历:设计:采用多视角解释性现象分析法(IPA):方法:对八个亲子二人组进行了十六次半结构式访谈,并按照 IPA 原则对访谈结果进行了分析:结果:确定了三个主主题和三个次主题:过渡和交易 "包括1.1 "责任转移和自我效能"; 2:3.1 "找到有效的治疗方法",3.2 "应对持续管理"。治疗方案的不确定性是家庭最初面临的主要困难。到了青春期,由于疾病管理的责任和对身体形象认识的提高带来了更多的挑战,困难转变为更加注重身份认同。家长和儿童都认为,银屑病的可见性和耻辱感是银屑病患者生活中最痛苦的方面,他们的负面情绪在青春期再次出现:本研究表明,儿童银屑病会对儿童产生重大影响,尤其是当他们开始向青春期过渡时。研究结果还强调了银屑病给父母带来的负担。因此,需要采取心理干预措施(如经过调整的正念认知行为疗法)来有针对性地减轻压力。此类干预措施可能需要系统性的关注,并支持对实际影响的验证和对污名化的恐惧。
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来源期刊
British Journal of Health Psychology
British Journal of Health Psychology PSYCHOLOGY, CLINICAL-
CiteScore
14.10
自引率
1.30%
发文量
58
期刊介绍: The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.
期刊最新文献
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