Experiences of social burden amongst survivors of breast cancer in Gaza: A qualitative study

IF 2.7 3区 医学 Q1 NURSING European Journal of Oncology Nursing Pub Date : 2024-10-23 DOI:10.1016/j.ejon.2024.102716
Walaa Ammar-Shehada, Piet Bracke, Melissa Ceuterick
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Abstract

Purpose

This qualitative study explores how social-cultural factors can either amplify or attenuate prospects for social support following a breast cancer diagnosis. The aim of the study is to analyse narratives of individuals diagnosed with breast cancer to examine how the illness influences social support and hence their post-illness experiences.

Methods

Forty semi-structured interviews, including thirty-eight with breast cancer survivors, are analysed using a grounded theory approach. Data were collected between September 2020 and April 2021.

Results

Participants' perceptions indicate that three main factors influenced experiences and the level of social support received. The first involves stigmatised cancer-related discourses and practices affecting women's social interactions and roles. The second is specific to (ex)married participants. It reveals how the foundation of marriage prior to the illness is a determining and influencing factor in the experience of women after illness. The third demonstrates how specific social identities enable coping, negotiation, and challenging cancer-related stigma, turning their experiences toward positivity.

Conclusions

The study concludes that breast cancer acts as a figurative magnifying glass, illuminating latent social practices in the community. This highlights the need to nurture existing social bonds or address the fragility of ties within distinct social categories. The research suggests implementing customised support interventions aligned with each group of survivors' unique needs. Furthermore, enhancing awareness within patients' social networks regarding the illness and how to provide support, along with enhancing survivors' financial security through economic empowerment, may contribute to more effective coping with the social consequences of the illness.
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加沙乳腺癌幸存者的社会负担经历:定性研究。
目的:本定性研究探讨了社会文化因素如何在乳腺癌确诊后扩大或缩小社会支持的前景。研究的目的是分析被诊断为乳腺癌患者的叙述,研究疾病如何影响社会支持,进而影响他们患病后的经历:采用基础理论方法分析了 40 个半结构式访谈,其中包括 38 个与乳腺癌幸存者的访谈。数据收集时间为 2020 年 9 月至 2021 年 4 月:结果:参与者的看法表明,有三个主要因素影响了他们的经历和所获得的社会支持水平。第一个因素涉及与癌症相关的污名化言论和做法,这些言论和做法影响了女性的社会交往和角色。第二个因素是针对(前)已婚参与者的。它揭示了患病前的婚姻基础是如何决定和影响妇女患病后的经历的。第三项研究表明,特定的社会身份是如何帮助妇女应对、协商和挑战与癌症相关的污名化,使她们的经历转向积极的一面:本研究的结论是,乳腺癌就像一个形象的放大镜,照亮了社区中潜在的社会实践。这凸显了培养现有社会纽带或解决不同社会类别中纽带脆弱问题的必要性。研究建议根据每个幸存者群体的独特需求实施定制的支持干预措施。此外,提高患者的社会网络对疾病和如何提供支持的认识,同时通过经济赋权增强幸存者的经济保障,可能有助于更有效地应对疾病的社会后果。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
4.40
自引率
3.60%
发文量
109
审稿时长
57 days
期刊介绍: The European Journal of Oncology Nursing is an international journal which publishes research of direct relevance to patient care, nurse education, management and policy development. EJON is proud to be the official journal of the European Oncology Nursing Society. The journal publishes the following types of papers: • Original research articles • Review articles
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