Safae Nour El Hadi RN, MSc , Renzo Zanotti RN, PhD , Matteo Danielis RN, PhD
{"title":"Lived experiences of persons with heart transplantation: A systematic literature review and meta-synthesis","authors":"Safae Nour El Hadi RN, MSc , Renzo Zanotti RN, PhD , Matteo Danielis RN, PhD","doi":"10.1016/j.hrtlng.2024.10.013","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Heart transplantation (HT) recipients often report improved quality of life and increased overall happiness, viewing the transplantation as a rebirth and a second chance at life. However, interpretations of normality vary among individuals. Understanding patients' and caregivers’ experiences in depth is crucial to adjust clinical care paths and avoid complications.</div></div><div><h3>Objective</h3><div>To examine the experiences of patients and caregivers after cardiac transplantation.</div></div><div><h3>Methods</h3><div>A systematic search of the literature was performed from January 1, 2013, to September 30, 2023, using the MEDLINE (PubMed), CINHAL (EBSCO), SCOPUS, Web of Science, and Embase (OVID) databases. Full-text, primary qualitative articles written in English, which reported patients’ experiences of daily life after HT, were included.</div></div><div><h3>Results</h3><div>The search yielded 5,114 articles; 13 articles that fully met the inclusion criteria were selected for extraction and synthesis. The inductive approach led to the identification of 28 codes, which were then grouped into seven categories and three themes: 1) Undergoing an emotionally charged journey, 2) Balancing personal health and social dynamics, and 3) Fostering existential reflection.</div></div><div><h3>Conclusions</h3><div>This review underscores the importance of further research and the development of a standardized assessment framework for post-HT patients, emphasizing the need to consider not just clinical factors but also psychological and personal aspects to improve outcomes and quality of life. Additionally, the review identified a lack of comprehensive information about the experiences of caregivers, highlighting the need for further studies to better understand and support their roles in the post-transplant journey.</div></div>","PeriodicalId":55064,"journal":{"name":"Heart & Lung","volume":"69 ","pages":"Pages 174-184"},"PeriodicalIF":2.4000,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Heart & Lung","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0147956324002036","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CARDIAC & CARDIOVASCULAR SYSTEMS","Score":null,"Total":0}
引用次数: 0
Abstract
Background
Heart transplantation (HT) recipients often report improved quality of life and increased overall happiness, viewing the transplantation as a rebirth and a second chance at life. However, interpretations of normality vary among individuals. Understanding patients' and caregivers’ experiences in depth is crucial to adjust clinical care paths and avoid complications.
Objective
To examine the experiences of patients and caregivers after cardiac transplantation.
Methods
A systematic search of the literature was performed from January 1, 2013, to September 30, 2023, using the MEDLINE (PubMed), CINHAL (EBSCO), SCOPUS, Web of Science, and Embase (OVID) databases. Full-text, primary qualitative articles written in English, which reported patients’ experiences of daily life after HT, were included.
Results
The search yielded 5,114 articles; 13 articles that fully met the inclusion criteria were selected for extraction and synthesis. The inductive approach led to the identification of 28 codes, which were then grouped into seven categories and three themes: 1) Undergoing an emotionally charged journey, 2) Balancing personal health and social dynamics, and 3) Fostering existential reflection.
Conclusions
This review underscores the importance of further research and the development of a standardized assessment framework for post-HT patients, emphasizing the need to consider not just clinical factors but also psychological and personal aspects to improve outcomes and quality of life. Additionally, the review identified a lack of comprehensive information about the experiences of caregivers, highlighting the need for further studies to better understand and support their roles in the post-transplant journey.
期刊介绍：
Heart & Lung: The Journal of Cardiopulmonary and Acute Care, the official publication of The American Association of Heart Failure Nurses, presents original, peer-reviewed articles on techniques, advances, investigations, and observations related to the care of patients with acute and critical illness and patients with chronic cardiac or pulmonary disorders.
The Journal''s acute care articles focus on the care of hospitalized patients, including those in the critical and acute care settings. Because most patients who are hospitalized in acute and critical care settings have chronic conditions, we are also interested in the chronically critically ill, the care of patients with chronic cardiopulmonary disorders, their rehabilitation, and disease prevention. The Journal''s heart failure articles focus on all aspects of the care of patients with this condition. Manuscripts that are relevant to populations across the human lifespan are welcome.
京公网安备 11010802042870号
京ICP备2023020795号-1
分享
求助内容：
应助结果提醒方式：
扫码关注我们
