Patient-centered care in pulmonary fibrosis: access, anticipate, and act.

IF 5.8 2区 医学 Q1 Medicine Respiratory Research Pub Date : 2024-11-01 DOI:10.1186/s12931-024-02997-7
Delian E Hofman, Tonia Magrì, Catharina C Moor, Luca Richeldi, Marlies S Wijsenbeek, Yuko Waseda
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Abstract

Comprehensive care integrates individual patient needs and is highly valued for patients with pulmonary fibrosis (PF). The importance of a patient-centered care approach is rooted in the unpredictable progressiveness of the disease course in PF. The respiratory impairment associated with PF has a major impact on the quality of life for both patients and their caregivers. We believe that prioritizing patient preferences could improve the shared decision making process and may ultimately lead to better health outcomes. Despite the growing emphasis for this approach, it remains challenging to adopt it in clinical practice. In this review, we propose the comprehensive Triple A Care Model, consisting of the domains Access, Anticipate, and Act, which emphasizes core elements of patient-centered care for patients with PF. We will provide an overview of the unmet needs in care for patients with PF and elaborate on the current methods for delivering patient-centered care. The latest insights into symptom management and supportive measures and several approaches to improving access to care are discussed, in line with the most recent guidelines.

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以患者为中心的肺纤维化护理:获取、预测和行动。
综合护理考虑了患者的个体需求,对肺纤维化(PF)患者具有很高的价值。以患者为中心的护理方法之所以重要,是因为肺纤维化的病程具有不可预测的进展性。与肺纤维化相关的呼吸障碍对患者及其护理人员的生活质量都有重大影响。我们认为,优先考虑患者的偏好可以改善共同决策过程,并最终带来更好的健康结果。尽管这种方法越来越受到重视,但在临床实践中采用这种方法仍具有挑战性。在这篇综述中,我们提出了全面的三A护理模式,由获取、预测和行动三个领域组成,强调了为 PF 患者提供以患者为中心的护理的核心要素。我们将概述心房颤动患者在护理方面尚未满足的需求,并详细介绍目前提供以患者为中心的护理的方法。我们还将讨论症状管理和支持性措施方面的最新见解,以及根据最新指南改善护理可及性的几种方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Respiratory Research
Respiratory Research RESPIRATORY SYSTEM-
CiteScore
9.70
自引率
1.70%
发文量
314
审稿时长
4-8 weeks
期刊介绍: Respiratory Research publishes high-quality clinical and basic research, review and commentary articles on all aspects of respiratory medicine and related diseases. As the leading fully open access journal in the field, Respiratory Research provides an essential resource for pulmonologists, allergists, immunologists and other physicians, researchers, healthcare workers and medical students with worldwide dissemination of articles resulting in high visibility and generating international discussion. Topics of specific interest include asthma, chronic obstructive pulmonary disease, cystic fibrosis, genetics, infectious diseases, interstitial lung diseases, lung development, lung tumors, occupational and environmental factors, pulmonary circulation, pulmonary pharmacology and therapeutics, respiratory immunology, respiratory physiology, and sleep-related respiratory problems.
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