Translation, Reliability and Development of a Calculator for the Brazilian Portuguese Version of the Family Empowerment Scale (FES) in Caregivers of Individuals With Cerebral Palsy

IF 1.8 4区医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-11-03 DOI:10.1111/cch.70001

Acsa Soares Santos, Luana Cristina da Silva, Maria Eduarda Muniz, Felipe Farah, Deisiane Oliveira Souto, Rithelly Barbosa de Almeida, Mariana Aguiar de Matos, Paula Silva de Carvalho Chagas, Hércules Ribeiro Leite

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Abstract

Introduction

Care for patients with cerebral palsy (CP) poses significant challenges, with emphasis on the crucial role of family involvement in patients' well-being. The Family Empowerment Scale (FES) assesses parents/caregivers' perception of their ability to promote and influence their children's development in three domains: family, service system and community.

Objectives

The objectives of this study were to translate the FES into Brazilian Portuguese, to develop a calculator for data transformation and analysis and to evaluate the psychometric properties of the scale with Brazilian caregivers of children and adolescents with CP.

Methods

Translation occurred in four stages: translation, synthesis, back-translation and review of the translated version. A calculator was then developed in the Excel program, to present data in absolute values and graphically for each subscale. Statistical analysis included Bland–Altman, Intraclass Correlation Coefficient (ICC), Internal Consistency, and Floor and Ceiling Effect.

Results

In total, 50 parents and caregivers participated to the measurement properties investigation, and the scale demonstrated good reliability for the family (ICC = 0.80) and services (ICC = 0.81) subscales, as well as for the overall scale (ICC = 0.88). The community subscale showed moderate reliability (ICC = 0.68), with an adequate Cronbach's alpha (0.89). The FES showed no ceiling or floor effects and a small limit of agreement. The data of all participants were analysed using the calculator.

Conclusion

The FES-Brazilian Portuguese presented good reliability for assessing family empowerment in caregivers of children and adolescents with CP in Brazil, offering insights into this construct and guiding family-centred interventions. In addition, the calculator could be viable for adequate management and dissemination of data.

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巴西葡萄牙语版脑瘫患者护理者家庭赋权量表 (FES) 计算器的翻译、可靠性和开发。

导言：脑瘫（CP）患者的护理工作面临着巨大的挑战，重点是家庭参与在患者福祉中的关键作用。家庭赋权量表（FES）可评估父母/照顾者在家庭、服务系统和社区三个领域促进和影响子女发展的能力：本研究的目的是将 FES 翻译成巴西葡萄牙语，开发用于数据转换和分析的计算器，并对巴西 CP 儿童和青少年照顾者的心理测量特性进行评估：翻译分为四个阶段：翻译、综合、回译和审阅翻译版本。然后在 Excel 程序中开发了一个计算器，以绝对值和图表形式显示每个分量表的数据。统计分析包括Bland-Altman、同类相关系数（ICC）、内部一致性以及下限和上限效应：共有 50 名家长和照顾者参与了测量特性调查，量表的家庭分量表（ICC = 0.80）和服务分量表（ICC = 0.81）以及总量表（ICC = 0.88）均显示出良好的可靠性。社区分量表显示出中等程度的可靠性（ICC = 0.68），具有适当的 Cronbach's alpha（0.89）。FES 没有显示出上限或下限效应，一致性限制较小。所有参与者的数据均使用计算器进行了分析：巴西葡萄牙语 FES 在评估巴西患有脊柱侧弯症的儿童和青少年的照顾者的家庭赋权方面具有良好的可靠性，有助于深入了解这一概念并指导以家庭为中心的干预措施。此外，该计算器还可用于数据的适当管理和传播。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.