{"title":"Understanding the complexity of decision-making for mothers of young children with ambulatory cerebral palsy: A qualitative phenomenological study","authors":"","doi":"10.1111/dmcn.16173","DOIUrl":null,"url":null,"abstract":"<p>Including parents in decision-making is an important goal in medicine. We still have a lot to learn about what influences the decisions that parents make. Cerebral palsy (CP) is a lifelong and complex condition. Parents of children with CP make a lot of decisions about what to do, or not, related to their child's medical care. The purpose of our study was to talk to parents to understand what things impact their decision-making.</p><p>One author talked to 18 mothers of 20 children. Children had to be 4 to 8 years old, have spasticity, and have some ability to walk. We wanted to talk to this group of parents specifically because, not only do families have a lot of medical decisions to make, but some of the treatments do not have a lot of research to know how helpful they are.</p>","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":"67 1","pages":"e11"},"PeriodicalIF":3.8000,"publicationDate":"2024-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/dmcn.16173","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Medicine and Child Neurology","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16173","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Including parents in decision-making is an important goal in medicine. We still have a lot to learn about what influences the decisions that parents make. Cerebral palsy (CP) is a lifelong and complex condition. Parents of children with CP make a lot of decisions about what to do, or not, related to their child's medical care. The purpose of our study was to talk to parents to understand what things impact their decision-making.
One author talked to 18 mothers of 20 children. Children had to be 4 to 8 years old, have spasticity, and have some ability to walk. We wanted to talk to this group of parents specifically because, not only do families have a lot of medical decisions to make, but some of the treatments do not have a lot of research to know how helpful they are.
期刊介绍：
Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA).
For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.
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