{"title":"The experiences of living with multiple myeloma and a palliative approach to care: A grounded theory study.","authors":"Ambereen Weerahandi, Shane Sinclair, Shelley Raffin-Bouchal, Linda Christine Watson, Laurie Lemieux","doi":"10.5737/23688076344539","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>Multiple myeloma is an incurable hematologic cancer. A palliative approach to care can be used in conjunction with curative therapy to alleviate suffering, but is underutilized in the hemato- oncology population. The purpose of this study was to explore living with multiple myeloma and individuals' experiences with, and perceptions of a palliative approach in their care.</p><p><strong>Methods: </strong>Straussian grounded theory was employed. Ten individuals with multiple myeloma participated between October 2021 and May 2022.</p><p><strong>Results: </strong>A theoretical model depicting the process of living with multiple myeloma was developed. Seven categories emerged from the data, as well as a core category: 'existing in the liminal space between living with and dying from multiple myeloma'. Results demonstrate that a palliative approach to care was inconsistently utilized.</p><p><strong>Conclusions: </strong>The model designed from the participant data offers an explanation of the process of living with multiple myeloma and how a palliative approach to care can be utilized to help these individuals.</p>","PeriodicalId":31563,"journal":{"name":"Canadian Oncology Nursing Journal","volume":"34 4","pages":"539-561"},"PeriodicalIF":0.0000,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11537443/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Canadian Oncology Nursing Journal","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.5737/23688076344539","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Purpose: Multiple myeloma is an incurable hematologic cancer. A palliative approach to care can be used in conjunction with curative therapy to alleviate suffering, but is underutilized in the hemato- oncology population. The purpose of this study was to explore living with multiple myeloma and individuals' experiences with, and perceptions of a palliative approach in their care.
Methods: Straussian grounded theory was employed. Ten individuals with multiple myeloma participated between October 2021 and May 2022.
Results: A theoretical model depicting the process of living with multiple myeloma was developed. Seven categories emerged from the data, as well as a core category: 'existing in the liminal space between living with and dying from multiple myeloma'. Results demonstrate that a palliative approach to care was inconsistently utilized.
Conclusions: The model designed from the participant data offers an explanation of the process of living with multiple myeloma and how a palliative approach to care can be utilized to help these individuals.
期刊介绍：
The Canadian Oncology Nursing Journal is published quarterly in the Winter, Spring, Summer and Fall. The CONJ is the only Canadian publication in cancer nursing. It is a bilingual, peer-reviewed journal dedicated to the interests of the professional nurse who provides care to patients with cancer and their families. The journal endeavours to publish timely papers, promote the image of the nurse involved in cancer care, stimulate nursing issues in oncology nursing and encourage nurses to publish in national media.
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