Involvement of family caregivers in dementia care research: a scoping review protocol.

IF 6.3 4区医学 Q1 MEDICINE, GENERAL & INTERNAL Systematic Reviews Pub Date : 2024-11-11 DOI:10.1186/s13643-024-02696-w

Franziska Anushi Jagoda, Julian Hirt, Claudia Mueller, Margareta Halek

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Abstract

Background: Family caregivers of people with dementia are a distinct group due to the particularly stressful and time-intensive care situation at home. Despite these challenges, involving them in research is crucial to better understand and address their specific needs. However, little evidence exists regarding a tailored approach for researchers for this group considering their situation at home.

Methods: A scoping review will be conducted following the Joanna Briggs Institute methodological guidance, including the databases MEDLINE (PubMed), CINAHL, Scopus (Elsevier), and PsycINFO (EBSCO). The review will include family caregivers of people with dementia, regardless of age, gender, or ethnicity, who have been actively involved in research throughout the research process. Moreover, sources of evidence from any country in both English and German are eligible for inclusion. Sources will be screened by two independent reviewers. Results will be extracted using a tailored charting tool and presented in the final report according to the research questions and objectives.

Discussion: Developing a tailored approach to involve family caregivers of people with dementia in research and development has profound importance to both the scientific community and the target group itself.

Systematic review registration: Open Science Framework https://doi.org/10.17605/OSF.IO/PMZYV .

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痴呆症护理研究中家庭护理人员的参与：范围界定审查协议。

背景：痴呆症患者的家庭照护者是一个特殊的群体，因为他们在家中的照护工作压力特别大，时间特别紧张。尽管存在这些挑战，但让他们参与研究对于更好地了解和满足他们的特殊需求至关重要。然而，考虑到这一群体在家中的处境，研究人员为他们量身定制的研究方法却鲜有证据：将按照乔安娜-布里格斯研究所的方法指南进行范围界定综述，包括 MEDLINE (PubMed)、CINAHL、Scopus (Elsevier) 和 PsycINFO (EBSCO) 等数据库。综述将包括痴呆症患者的家庭照护者，不论其年龄、性别或种族，他们在整个研究过程中都积极参与了研究。此外，任何国家的英语和德语证据来源均可纳入。资料来源将由两名独立审查员进行筛选。研究结果将使用量身定制的图表工具进行提取，并根据研究问题和目标在最终报告中进行阐述：讨论：开发一种量身定制的方法，让痴呆症患者的家庭照顾者参与研究和开发，这对科学界和目标群体本身都具有深远的意义：开放科学框架 https://doi.org/10.17605/OSF.IO/PMZYV 。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Systematic Reviews Medicine-Medicine (miscellaneous)

CiteScore

8.30

自引率

0.00%

发文量

241

审稿时长

11 weeks

期刊介绍： Systematic Reviews encompasses all aspects of the design, conduct and reporting of systematic reviews. The journal publishes high quality systematic review products including systematic review protocols, systematic reviews related to a very broad definition of health, rapid reviews, updates of already completed systematic reviews, and methods research related to the science of systematic reviews, such as decision modelling. At this time Systematic Reviews does not accept reviews of in vitro studies. The journal also aims to ensure that the results of all well-conducted systematic reviews are published, regardless of their outcome.